CommunitiesB-Cell LymphomaWhy can't I get straight answers about blood clots after lymphoma treatment?

Why can't I get straight answers about blood clots after lymphoma treatment?

BB

Community Member

10 days ago

Hi, everybody calls me Jo. I was diagnosed Feb. 23, 2023 with Diffuse Large B cell Lymphoma. I took 3 chemo treatments with THE RED DEVIL followed up by something like Agent orange. On the third trip, I said half way through, I QUIT! NO MORE! I went home and did not return for 4 months. Then I took 27 radiation treatments. Was told I was good and to return in 3 months for follow up...now I can't get a straight answer, being 2 years out from treatment. Hospitalized for the 2nd time in 3 months with blood clots to the point of critical condition... I'm getting conflicting answers from the medical professionals

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CA

Community Member

9 days ago

Getting conflicting information from different medical professionals can be incredibly frustrating, especially when dealing with serious complications like blood clots after cancer treatment. This situation highlights the importance of having clear communication with your healthcare team and potentially seeking a second opinion or asking for a consultation with a hematologist who specializes in blood clotting disorders. Many others in this community have faced similar challenges with getting consistent answers from their medical teams, so you're definitely not alone in this experience.

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BB

Community Member

9 days ago

Thank you. It kinda makes me feel as if I really just don't matter to my Hematologist. He doesn't ever take time to explain things. He only gives short irrelevance can't answers if any answer at all. Then he rushed out the door as fast as possible. If I ask a sincere question, then he asks me why does it matter! It matters because it my body!! My life fe.

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