CommunitiesB-Cell LymphomaWhat should I expect from red devil chemo after CLL and lymphoma diagnosis?

What should I expect from red devil chemo after CLL and lymphoma diagnosis?

MC

Community Member

2 months ago

Hi my name is Peggy I was diagnosed about 6 months ago with CLL/SLL non Hodgkin’s lymphoma and hospitalized about a month ago with dehydration and high count of calcium. At which time they did a biopsy of a lump in my groin area and that came back with large B cell lymphoma. At which time I started chemo which was 3 weeks ago this Tuesday the 25 and on this day I am starting the red devil chemo treatment which I have been told is pretty tough. I also had biopsies of other lumps in that area and that was the CLL also a bone marrow biopsy. We shall see. Good luck to all.

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16 comments
Comment
MC

Community Member

2 months ago

Also I have been told that I am having chemo till the end of March every three weeks . Then radiation maybe 4 times after that.

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CA

Community Member

2 months ago

Red devil chemotherapy can be challenging, but many people find that knowing what to expect helps them prepare mentally and physically for the treatment. The community here has lots of experience with various chemo regimens and can offer practical tips for managing side effects and staying strong throughout treatment - consider sharing updates about how things are going so others can offer specific support and advice.

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TM

Community Member

a month ago

Hello Margaret I just finished 6 rounds of RCHOP chemo for large B cell lymphoma My advice stay positive eat 4 small meals a day , even if you don’t want to , drink lots of water , and stay active . I was in hospital twice but last month I was told I was in remission . You can do this !!!

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MC

Community Member

a month ago

Thank you Tim

AH

Community Member

a month ago

Hey, Peggy, I was diagnosed with Primary B cell Lymphoma in August, working through 6 rounds of Chemo every 21 days. I’m getting the Doxorubicin (red devil) as part of my mix and so far so good. My Oncologist told me by the numbers I am in remission already, but should finish treatments to be safe. Just wanted to say hang in there! You’ve got this! We are all in your corner!

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MC

Community Member

a month ago

Thank you Anne words of encouragement ❤️

MK

Community Member

a month ago

I was diagnosed two years ago with the very same CLL/SLL. Found the B cell lymphoma and the also aspirated my bone marrow and found small white cell lymphocytic leukemia and I was extremely anemic. Have been taking a medication called Brukinsa for two months now and feeling much better… my immune system is still compromised and I can’t be in big crowds. But Brukinsa is a relatively new medicine that is a target therapy drug instead of chemo. Please ask your doctor and you also can read about it online. Mary Zierke

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LG

Community Member

a month ago

Hi I’ve had CLL for 15 years had chemo 2 times during these years my cll modified to large B cell lymphoma I had the RCHOP chemotherapy but still active so now its CAR T treatment praying for the best So keep up a positive attitude lean on God and family we all are going to be healthy again Keep praying Good Luck Linda

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MC

Community Member

a month ago

Thank you Linda for sharing.

MC

Community Member

a month ago

Thank you Mary.

MC

Community Member

15 days ago

I just had my third round of chemo and I got so sick with a head cold and it’s been 3 weeks and I still don’t feel well. Is it harder to recover while having chemo.

LG

Community Member

15 days ago

Hi Peggy With the red devil drink a lot of water it helps take one day at a time and also do not eat any of your favorite foods during these days they don’t taste right and you’ll never will eat them again Good Luck God bless you Linda

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MC

Community Member

12 days ago

Hi Linda you are right nothing tastes right..

MC

Community Member

4 days ago

Hi Margaret here I have had 3 chemo treatments so far. My hair has fallen out and now my eyelashes and eyebrows are very sparse, do your eyelashes and brows grow back?

LG

Community Member

4 days ago

Hi Margaret I went through the heavy chemo ended oct I had no eyebrows or eyelashes now my hair is growing back and eyebrows too my eyelashes are thicker and longer than before Keep positive Put eyeliner on bottom of eye no one will notice as much God bless Linda

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MC

Community Member

4 days ago

Thank you Linda that’s encouraging

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