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3 months agoHi my name is Peggy I was diagnosed about 6 months ago with CLL/SLL non Hodgkin’s lymphoma and hospitalized about a month ago with dehydration and high count of calcium. At which time they did a biopsy of a lump in my groin area and that came back with large B cell lymphoma. At which time I started chemo which was 3 weeks ago this Tuesday the 25 and on this day I am starting the red devil chemo treatment which I have been told is pretty tough. I also had biopsies of other lumps in that area and that was the CLL also a bone marrow biopsy. We shall see. Good luck to all.
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3 months agoAlso I have been told that I am having chemo till the end of March every three weeks . Then radiation maybe 4 times after that.
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3 months agoRed devil chemotherapy can be challenging, but many people find that knowing what to expect helps them prepare mentally and physically for the treatment. The community here has lots of experience with various chemo regimens and can offer practical tips for managing side effects and staying strong throughout treatment - consider sharing updates about how things are going so others can offer specific support and advice.
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3 months agoHello Margaret I just finished 6 rounds of RCHOP chemo for large B cell lymphoma My advice stay positive eat 4 small meals a day , even if you don’t want to , drink lots of water , and stay active . I was in hospital twice but last month I was told I was in remission . You can do this !!!
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3 months agoThank you Tim
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3 months agoHey, Peggy, I was diagnosed with Primary B cell Lymphoma in August, working through 6 rounds of Chemo every 21 days. I’m getting the Doxorubicin (red devil) as part of my mix and so far so good. My Oncologist told me by the numbers I am in remission already, but should finish treatments to be safe. Just wanted to say hang in there! You’ve got this! We are all in your corner!
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3 months agoThank you Anne words of encouragement ❤️
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3 months agoI was diagnosed two years ago with the very same CLL/SLL. Found the B cell lymphoma and the also aspirated my bone marrow and found small white cell lymphocytic leukemia and I was extremely anemic. Have been taking a medication called Brukinsa for two months now and feeling much better… my immune system is still compromised and I can’t be in big crowds. But Brukinsa is a relatively new medicine that is a target therapy drug instead of chemo. Please ask your doctor and you also can read about it online. Mary Zierke
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3 months agoHi I’ve had CLL for 15 years had chemo 2 times during these years my cll modified to large B cell lymphoma I had the RCHOP chemotherapy but still active so now its CAR T treatment praying for the best So keep up a positive attitude lean on God and family we all are going to be healthy again Keep praying Good Luck Linda
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3 months agoThank you Linda for sharing.
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3 months agoThank you Mary.
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2 months agoI just had my third round of chemo and I got so sick with a head cold and it’s been 3 weeks and I still don’t feel well. Is it harder to recover while having chemo.
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2 months agoHi Peggy With the red devil drink a lot of water it helps take one day at a time and also do not eat any of your favorite foods during these days they don’t taste right and you’ll never will eat them again Good Luck God bless you Linda
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2 months agoHi Linda you are right nothing tastes right..
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2 months agoHi Margaret here I have had 3 chemo treatments so far. My hair has fallen out and now my eyelashes and eyebrows are very sparse, do your eyelashes and brows grow back?
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2 months agoHi Margaret I went through the heavy chemo ended oct I had no eyebrows or eyelashes now my hair is growing back and eyebrows too my eyelashes are thicker and longer than before Keep positive Put eyeliner on bottom of eye no one will notice as much God bless Linda
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2 months agoThank you Linda that’s encouraging
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a month agoHi I just had my fourth treatment and this has been the toughest yet emotionally I am a mess it feels like this will never end. Anyone else real emotional?
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a month agoAlthough my last treatments were more difficult, the five months of chemo now seems like a short time of my life.
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a month agoHi Are your last 2 treatments stronger than the previous ones? I just had my fourth and it has been rougher.
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22 days agoHi I just had my fifth chemo and this is the hardest yet high anxiety and heat coming out of the top of my head so bad. In bed for the last 5 days and I don’t want to have my last chemo at all after this. All I do is apologize for my attitude I can’t handle being around anyone. Has anyone else had this experience?
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22 days agoHi Margaret The chemo is tough on all of your body and emotions try to get the last treatment because you want your cancer to go away keep a positive attitude even when it’s hard pray for strength and god will get you through your almost there. Linda
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22 days agoThanks Linda❣️
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22 days agoMargaret toughest thing I have been through in my life, no question! Chemo is physical and mental anguish, we all have felt just like you. Get that 6 th treatment ! This RCHOP works and you to will soon start to feel better and get back to living your life. Stay strong
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10 days agoThank you Tim ❣️
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7 days agoHi everyone I am getting my sixth chemo tomorrow and it is supposed to be my last. I know that it will be tough but I am ready for it. My next Pet scan is March 12 can’t wait for the results. I can do this.❤️❤️
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