How do I know if my follicular lymphoma comes back after remission?

Question

Hello Toni here.  I was diagnosed with Follicular Lymphoma in December 2024.  I went through 6 rounds of RCHOP and finished in April 2025.  I was unable to work during treatment and although it may be different for others I would not recommend working while having this aggressive chemo treatment.  I’m in remission now but I am a bit concerned about how to determine if the cancer returns.  Before being diagnosed, I did not have any symptoms until I felt a lump in my pelvic area.  By the time I had all the tests that led to the PetScan I was full of cancer.  Unfortunately insurance will not pay for future PetScans unless the cancer returns.  I stress over how I can ever be sure if it returns again.  In my case Chemo was absolutely brutal, however, I do feel blessed it was caught in time.

Outcomes4Me · Accepted Answer

Monitoring for recurrence after remission is a common concern, and many cancer centers have follow-up protocols that include regular physical exams, blood work, and imaging when medically indicated. It's worth discussing with your oncology team about what specific monitoring plan they recommend for your situation, as they may have strategies for early detection that work within insurance guidelines. Many patients in this community have shared similar worries about surveillance after treatment, and connecting with others who understand this journey can provide valuable insights and support during this phase of recovery.

How do I know if my follicular lymphoma comes back after remission?

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