"Stage 4 BTC: Experiences with bile duct stents and PTC catheters?"

Yes I think I’m not an expert. She started out with 2 stents and two weeks later she’s got 3. Keeps getting pancreatitis

My loved one, who is 76 years old, was hospitalized with a septic infection caused by a blocked bile duct stent. The stent was removed and replaced with two new stents and a PTC catheter. This cancer is very aggressive and rare, and symptoms typically appear when the disease is advanced. He has lost a significant amount of weight and has little appetite. It is heartbreaking to see him deteriorate after having been such an active and independent person.

Sending healing prayers for your dear friend. I hope she feels better soon.

Sending condolences and prayers for your loved one. It’s very difficult. Can you give me any tips on the most effective way to help

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Many patients with advanced biliary tract cancer face similar challenges with bile duct management, and you're not alone in dealing with these procedures. Hopefully, others in this community who have experience with stents and PTC catheter maintenance will share their insights about managing infections and the regular replacement schedule.

I had Primary Schlerosing Cholangitis. Had biliary stents placed and changed about every 5 weeks. Had liver transplant and whipple procedure May 8. Currently taking everolimus and xeloda. On cycle 6 of 8.

I have a stent replaced 3 months ago after 1.5 years of having a metal stent. Now I am getting infections. Drs. Do not know we’re are coming from. I have been under quimio. For 1.5 years. Lost 40 lbs. the tumor had spread to my liver and started using Targeted quimio for INHR2. My liver tumors now in remission but left my liver in really bad shape (“scars”) as well as my esophagus. In addition it also made my belly full of fluids. They need to drain them when it gets very bad. All of this happened in a matter of months once my first stent was removed. Now I have a new stent (metal) not sure how often should they be cleaned to prevent infections.

Why a liver transplant?

I’m 59 years old I was diagnosed 19 months ago with the same thing. I have one tube stick anatomy it’s capped but they replaced stents four times. I’m trying to find a doctor that will hopefully be able to take this tube out of me so I don’t have to have any tubes at all and my appetite is horrible. I need to fix that I on top of this. I have no stomach I had a complete hysterectomy when I was 17 so I’m skinny as it is very hard for me to put weight on, but I started drinking shakes and it’s hard. I don’t know what it is why I have no appetite. I don’t know if it’s something you’re putting in the food, but it’s horrible. I gotta talk to somebody that has a better solution to this. If I find out, I’ll let you know I came on your hoping to find answers if anybody has any solutions I’m all yours cause I don’t trust doctors anymore. I learned that a long time ago when I was 17 it’s so hard right now to trust anybody. God bless you, man stay in touch.

God bless you Lance!! Stay strong brother

Reading all these stories man touches my heart. I pray for all of you. I just wish I knew where else to go. And what else I can do to get an appetite.