CommunitiesBiliary Tract CancerHow do you stay positive with Stage 4 cholangiocarcinoma?

How do you stay positive with Stage 4 cholangiocarcinoma?

EM

Community Member

a month ago

I have been diagnosed with Stage 4 intrahepatic cholangiocarcinoma with metastasis to the spleen and abdominal lymph nodes. We started with Imfinzi, but that blew up my liver enzymes cancer had I not broken ribs from a fall. I am grateful for feeling so well!

1
5 comments
Comment
CA

Community Member

a month ago

Finding positivity during such a challenging diagnosis takes incredible strength, and it sounds like gratitude is already serving as a powerful anchor. Many people in this community have shared that focusing on the moments when they feel well, connecting with others who understand the journey, and celebrating small victories can help maintain hope even during the most difficult times.

WM

Community Member

13 days ago

I’m going through the same process right now , I was lucky to find a different doctor where my previous doctor saw me he never gave me any advice on my condition of chronic pain and fatigue well after seeing my new Dr she said to get a ultrasound on my stomach and they found my stage 4 bilary tube cancer that was also metastasis they told me I had 4 months to live . Well here we are 19 months later also a dr in NYC told me . My #s where the highest he’s ever seen ! Dr. Leiterman great guy! He’s on radio 101.5 for people who have cancer and he’s currently treating them with great success.

WM

Community Member

13 days ago

Extra, I have a question for you please? I have a drain sticking out of my stomach it’s capped. But they keep replacing my stent I’m on #4 now do you have a drain like me?

EM

Community Member

13 days ago

William, no, I do not have any tunes. I am pleased to hear about your success with your treatment--it gives me hope.

EM

Community Member

13 days ago

Tubes, not tunes (I have plenty of those)!

Outcomes4Me

© 2026 Outcomes4Me Inc. All rights reserved.