Has anyone had bladder removal and reconstruction for aggressive cancer?

Bladder reconstruction surgery is indeed a significant treatment option that oncologists consider for aggressive bladder cancer cases. Many community members have shared their experiences with this procedure and found it helpful to connect with others who have walked a similar path. Consider asking your medical team about what to expect during recovery and any support resources they recommend, and feel free to share more about your journey here where others can offer their insights and encouragement.

I had t1 aggressive which they removed a tumor and are doing BCG treatments. Heard Deon sanders did one, do not know the details but my Doctor mentioned it.

I have ts3 , went through chemo to shrink tumor so can be ready to remove my bladder using robotic techniques. Currently recovering from s stent removal surgery in my left urether..have decided to go with ileal conduit as outlet.

I have MIBC and I just started immunotherapy. I want to persevere my bladder and seems the only other option is to remove it. Trying this immunotherapy first and if it isn’t effective I’ll have to consider removal and having a neobladder created. Have my second infusion tomorrow.

Jim T, neo bladder requires permanent self catherization, are you able to do it??

I’m year 10 w/ neo bladder, have never needed to cath. I was 51 when I had surgery.

I've decided to not have bladder removal surgery, I still work and the outcome of having surgery would put me out of work 4-6 weeks not including the 5-10; day hospital stay after surgery..going for chemo treatment instead rest my life. Keeping my bladder may need further treatments that are currently not available. If had removal would not have that option