Awaiting My First Oncologist Visit

Starting BCG treatment 7/6/2025

Good luck. Im 1.5 yrs in. Doing good

I did the 6 week induction BCG treatment. All went well until my 6th week. I had flu like symptoms for weeks. No fever, just body aches

We all wish you the best, and we are all pulling for you!

Best to you and take one day at a time. Positive thoughts alsi can be very beneficial. Hang in there.

For your BCG treatments you might try no liquids for 4 - 6 hours before the appointment. This helps to hold the BCG in longer. After the treatment it would be good, if you can, to flip 15 minutes on each side, and on your stomach and back for about an hour or more. This helps to distribute the BCG. About two hours after the treatment start drinking clear watery liquids - about 60 - 80 ounces total. This helps to flush your bladder. This has helped me and other people. Hope it helps you!

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I had the double chemo first and it made me very sick. Then k had the BCG. It keeps coming back. Doesn’t mean it won’t work for you. BCG just made me really tired.

My brother in law was told he had a calcium tumor in his bladder. The pathology came back non invasive cancer. He’s going to get 6 BCG treatments. Is that what you have?

That waiting period between diagnosis and the first oncologist appointment can feel overwhelming, and it's completely natural to have many thoughts and questions during this time. The team at OHSU has experience helping patients navigate their bladder cancer journey, and that upcoming appointment will be an important step in getting the information and care plan that's right for your situation. Many community members find it helpful to write down questions beforehand so they can make the most of their time with the oncologist.