How do you cope with bladder removal surgery after BCG treatment failed?

Facing a major surgery like bladder removal can bring up many difficult emotions, and it's completely natural to feel scared about this next step in treatment. Many people in this community have walked similar paths and found ways to adapt and maintain their quality of life after surgery, so you're definitely not alone in this journey. Consider reaching out to others here who may have experience with this type of surgery - their insights about recovery, lifestyle adjustments, and coping strategies could be really valuable as you prepare for January.

Who removing bladder, just urologist?? Always get 2ndn opinion from an oncologist..mine said surgery is last option . 4th round of chemo, mine went from stage Ta3 down to Ta2, noo longer muscle invasive.

Mine is not muscle invasive yet but also have squamous cell carcinoma which spreads fast.

Anyone else have squamous cell cancer in bladder would like to hear what you think

I can only imagine how scared you must be! I am presently 3 mo out from Metamycin treatment (BCG didn’t work for me either). My greatest dread is hearing that I might have to have bladder removal! I will put you in my prayers and pray for total healing for you!!

Thank you and my prayers for you as well

See a Holistic Doctor and get away from chemo surgery etc, wake up before it’s too late late.

I am also a BCG failure. But I refuse to have my bladder removed just for my quality of life . ask your doctor about TAR – 200, a new, very promising treatment for non-muscle invasive bladder cancer…

I had almost the same bladder cancer but it was high grade stage 1 and when the BCG failed to work instead of having my bladder removed I was given another option which was Gencidabine and Docytaxel and that DID work and as of last month I am cancer free.

I had RC w/ neo bladder in 2016. It’s a major procedure, no doubt about it, but before you know it, it’ll be a tiny dot in your rear view mirror. Life w/neo bladder not a hardship. At least for me it isn’t.

Please do not try to replace peer reviewed treatment protocols that are accepted by the medical community with a horse de-wormer and youtube videos. Healthy, clean eating and healthy lifestyle choices will strengthen mind and body to help face this battle. But stay focussed, and think that something you can buy at Tractor Supply is going to "fix" this. Get second opinions from reputable medical facilities to see if there is a consensus on treatment path. Stay strong - and fight. You've got this.