CommunitiesBladder CancerHow do you cope with bladder removal surgery after BCG treatment failed?

How do you cope with bladder removal surgery after BCG treatment failed?

AH

Community Member

a month ago

Hi was diagnosed with bladder cancer stage one tried BCG treatments but it did not work I was told I have squamous cell cancer they will be removing my bladder in January. I’m scared and not looking forward to this. I am 5 years clear of colon cancer which was stage 3.

10 comments
Comment
CA

Community Member

a month ago

Facing a major surgery like bladder removal can bring up many difficult emotions, and it's completely natural to feel scared about this next step in treatment. Many people in this community have walked similar paths and found ways to adapt and maintain their quality of life after surgery, so you're definitely not alone in this journey. Consider reaching out to others here who may have experience with this type of surgery - their insights about recovery, lifestyle adjustments, and coping strategies could be really valuable as you prepare for January.

GP

Community Member

a month ago

Who removing bladder, just urologist?? Always get 2ndn opinion from an oncologist..mine said surgery is last option . 4th round of chemo, mine went from stage Ta3 down to Ta2, noo longer muscle invasive.

1
AH

Community Member

a month ago

Mine is not muscle invasive yet but also have squamous cell carcinoma which spreads fast.

1
AH

Community Member

a month ago

Anyone else have squamous cell cancer in bladder would like to hear what you think

1
JL

Community Member

a month ago

I can only imagine how scared you must be! I am presently 3 mo out from Metamycin treatment (BCG didn’t work for me either). My greatest dread is hearing that I might have to have bladder removal! I will put you in my prayers and pray for total healing for you!!

4
AH

Community Member

a month ago

Thank you and my prayers for you as well

3
MG

Community Member

16 days ago

See a Holistic Doctor and get away from chemo surgery etc, wake up before it’s too late late.

DB

Community Member

16 days ago

I am also a BCG failure. But I refuse to have my bladder removed just for my quality of life . ask your doctor about TAR – 200, a new, very promising treatment for non-muscle invasive bladder cancer…

MG

Community Member

15 days ago

I would start going through previous posts by others in this group because there are charts that indicate dosages of ivermectin and fenbendazole along with other beneficial foods, herbs, and supplements that will help. Also there are many helpful videos on YouTube. But the sooner you start taking ivermectin and or fenbendazole/mebendazole the better your chances to beat this.

CS

Community Member

6 days ago

I had almost the same bladder cancer but it was high grade stage 1 and when the BCG failed to work instead of having my bladder removed I was given another option which was Gencidabine and Docytaxel and that DID work and as of last month I am cancer free.

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