Should I seek a local bladder cancer specialist after multiple TURBTs?

Try Mayo clinc hospital

Thank you. I’m set to go to Lynn Cancer Institute in Boca Raton. I have found the Mayo Clinic site to be very informative as well. Thanks again.

Hi, I was diagnosed with high-grade T1 bladder cancer, had tumor removed , and now have just started with BCG treatment. I've been reading what you all have gone through, and 1st of all, I'm so sorry for what you are going through my heart and thoughts are with you all 💚 Has anyone had a successful BCG experience. I'm so scared that it will end up in my kidneys! Am I wasting precious time with this type of treatment? I would appreciate any input. Thanks for listening.

BCG is supposed to be the gold standard treatment but it can fail in many people. It failed with me twice. I am now going to get a gemcitabine treatment done in a similar way 6x. It also has a second chemical Docetaxel. This is fairly new. I hope it works. Scheduled to start in October with a cystoscopy test Jan 4. Good luck to you.

Thanks, Richard, I will definitely be thinking of you and hope for success. Take care.

You too

Come to Boston to Mass General hospital or Dana Faber...Best Cancer Doctors..u will have a team of drs look after u

Try Cleveland Clinic or one of their trained drs

Thanks for the input. It's much appreciated.

I did the gemcitabine several times, had a brief reprieve of the bladder cancer, but it kept coming back. Finally had the Urostomy and Prostatectomy in October 2024.

That’s not good news. How is it for you now? Where did you have it done.

Sorry u r going thru Robert but from the sounds of your post sound like it ISNT MUSCLE INVASIVE

I had 4 drs on my medical team... 2 Surgon were urologist , Oncologist & Physician Assistant. ..Mass General Boston. Had bladder removed immediately after scans 1ST TURBT..showed muscle - invasive 5.1 cm in bladder...didn't waste any time ..once it gets into muscle lining its getting ready to go outside of bladder to metastasize. I'm praying for u...good luck

No u were at stage 1 ..bcg treatment is usually 1st option ...be patient be your own best advocate. Research & knowledge is your best friend. BCAN.c om site ...educate yourself w anatomy of bladder & read about stages of bladder cancer ..it was the only way I knew what the doctors were telling me ..sending prayers🙏

Seeking a second opinion from a local specialist or cancer center team can be a valuable approach, especially when dealing with persistent cancer after multiple treatments. Many patients find that having a multidisciplinary team provides comprehensive care and different perspectives on treatment options. Consider reaching out to local cancer centers to discuss your case and see what specialized bladder cancer expertise they offer - this way you can explore all your options before deciding on the best path forward for your care.