Can't keep bladder chemo in for full time - any tips to help?

Many community members have shared similar experiences with intravesical treatments and have found various strategies helpful for retention. Some have mentioned techniques like adjusting fluid intake beforehand, positioning changes during treatment, or discussing timing modifications with their care team. Consider connecting with others here who may have navigated similar challenges, and definitely bring this up with your medical team as they may have specific suggestions tailored to your situation.

Is it advisable when treating bladder cancer to have a special oncologist in addition to your urologist/surgeon?

Thank you. What do you mean by special oncologist?

A doctor we whose practice deals with Oncology treatments plans. I'd there such a specialty?

I also have difficulty keeping the meds in for two hours after BCG infusion. I’m going to abstain from drinking any fluids for several hours before treatment next time.

When I had my initial bcg treatments, I stayed in office and laid on the table for 2 hours,. Then they emptied the bladder. It got easier after the first 2 and I was able to walk at the mall or go home or just sit in my car for 2 hours and hold the bcg.

I also started with BCG - 2 years worth. Was ready to get to the 3 weekly once a year stage and there was a shortage. Had to go to Gem once a month for a year. Most of my appointments were at 9:00 am, and I usually had very little fluids after 9 pm the night before. Never had an issue with holding BCG, but the Gem was uncomfortable. I have an hour commute from the center to get home, and I would squirm in seat as my mind focussed on trying to hold it the whole way. So instead of driving right away, I started walking around the center, I'd sit and check some email, walk some more while jamming to some music, and once my body and mind weren't dwelling on holding it, I'd start to head home.

Like the other person, I avoided drinking at. east 4 hours before the procedure. I also try to keep my mind of it by doing stuff around. The first one, I went home and sit in a chair and waited and it was awful as my mind keep reminding me I needed to pee. I decided to keep my mind off it by starting cooking dinner that night and it works. Stay strong, it.gping.to get better. Much love.