Communities›Bone Cancer›How do you cope with anxiety starting Kisqali and Faslodex for metastatic breast cancer?

How do you cope with anxiety starting Kisqali and Faslodex for metastatic breast...

NZ

Community Member

6 months ago

Two years ago I was diagnosed with breast cancer and had a double mastectomy and reconstructive surgery. Did great without chemo or radiation, just a daily dose of Anastrozole. Fast forward to this May when I started getting shoulder pain. Just thought it was rotater cuff problems. After PT and many tests, I did not expect a metastatic cancer diagnosis. Well, tomorrow I start Kisqali and then Monday I get my first Faslodex shot and next month I start Denosumab monthly injections. Needless to say, I am so anxious about the "Unknown". Side effects, body changes, and my overall daily well being. I did really well 2 years ago and I fear what's ahead. Would appreciate any feedback, good or bad.I tend to overthrow things, which usually causes insomnia. I just turned 60 last week ago and never imagined this would be how I would start a new decade.

4 comments
Comment
CA

Community Member

6 months ago

Starting new treatments after a metastatic diagnosis brings up so many valid concerns, and it's completely natural to feel anxious about the unknown. Many people in this community have found that connecting with others who have experience with similar treatment combinations can help ease some of those worries and provide practical tips for managing side effects. Consider reaching out to your care team about strategies for managing anxiety and sleep - they often have helpful resources and may be able to adjust your treatment plan if needed based on how your body responds.

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YM

Community Member

a month ago

I am almost in your same boat. I go to see my Oncologist tomorrow to see where I am at and a course of action. Prayers and blessings to you.

NZ

Community Member

a month ago

Best of luck to you, Yvette. Overall, I'm doing pretty good on the treatment plan.

RS

Community Member

5 days ago

I had mamograms every year, but my breast cancer was never detected. Finally, I began having falls, instability etc. My PCP sent me to a neurologist because she thought it was nerve related. I had an MRI done of different parts of my body to see what was going on. The results came back saying that they found some osteo (bone) lesions and they immediately sent me to an oncologist. That was in May of 2024. They did a bone biopsy on my hip (where they saw lesions on me). The results saying I have originally started out with breast cancer and it eventually moved (metastasized) to my bones. So, I was diagnosed as stage 4 metastatic breast to bone cancer. (Since it was never seen on my mamograms, I had cancer for who knows how long before it metastasized into my bones). So, with this history, they did not do any surgery on me since it was too late to try to remove the cancer before it spread. It had already spread. So I'm now on a pill form of chemo (kisqali), Letrozole (both of these daily), and I get an Xgeva shot once a month, as long as my monthly blood work shows that I'm within "acceptable" numbers in my margins (to consider that I'm at least ok to get the shot of xgeva). If the numbers in the margins change for the worst, I either can't get my shot or if really bad, they might then consider that my chemo pills are no longer working and a different course of action might have to be considered. I have already had the discussion with my oncologist about what would be an acceptable (to ME) change in my new medicine. I have already told her I'm not willing to do chemo through a port because the side effects of that dorm of chemo are too severe for me to put up with since I'm stage 4 and was given just 3-5 years to live at my 1st oncology appt. It is now beginning my 3rd year and I'm not doing so great. I just had another new lesion found on my tibia (top of lower leg bone). I already have ot on my breast, lower exterior skull bone, my hip, pelvis, spine and vertebrae (all along it) so it is quite advanced as is. If this new lesion is actually cancer also (bone scan coming up in 2 days), they will likely change my current regimen of meds. They know that any side effects of any (potentially) new treatments, must go through me for an ok or not. Hopefully my Kisqali, Letrozole and Xgeva are all doing their job, but I guess I'll find out soon enough. At that time I may be making a difficult decision on where to go through there. This was my history and medical background from my meds and the reasons of how I was diagnosed and treated thus far. I really hope some of this might be helpful to you. Take care, warrior 🩷

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