Community Member
10 days agoI have glioblastoma grade 4 brain cancer. Emy surgery was St. Patrick’s Day 2025. Lucky day because they were able to remove the entire tumor. I’ve done eight weeks of radiation and one year of chemo pills. I tried the Neptune And I was not a candidate as I have excessive sweating on my head and the wrays would not stay put on my head and the sweat with the electronic I was getting slightly shocked on my head. Anyway, my oncologist said there’s absolutely nothing more that I can do. This includes medical studies and drugs like ivermectin. I am 16 months into my survival. I am struggling because studies and my oncologist all say the average with treatment is 15 months. It scares me because I have so much. I still want to do. There is so much stuff that I’m reading or that people are sending me regarding studies, different kinds of tea’s or immuno therapy. But my doctor says none of those will help my cancer. I struggle believing that there is absolutely nothing left I could do for treatment. I trust my oncology team. They have taken a very good care of me. But why do I keep hearing so much other treatments that glioblastoma patients have had yet my doctor says nothing is available for me.
Community Member
10 days agoIt's completely understandable to feel confused when hearing about different treatment options that don't align with what your medical team is recommending. The gap between what circulates online or in patient communities versus what oncologists present as viable options often stems from differences in individual cases, trial eligibility criteria, or treatments that haven't yet shown proven benefit in clinical studies. Consider having an open conversation with your oncology team about specific treatments you've heard about - they can explain why certain options might not be suitable for your particular situation and help you understand what factors influence treatment decisions.
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