How do others cope with grade 4 GBM during chemo and radiation?

Thank you for sharing your journey and staying connected with this supportive community during your treatment. Many people going through GBM treatment find that connecting with others who understand helps them navigate both the challenging days and the moments of hope - sharing experiences about managing side effects, finding small daily routines that help, and leaning on faith and loved ones can make a real difference. This community is here to support you through every step, and others facing similar paths will surely benefit from your openness and strength.

Hi Rebecca….. my wife was diagnosed with much the same thing and my heart breaks for you So far it’s been…..a journey. I don’t have any magical words or any great ideas , I don’t know of any trials…..it’s just her and I going through this challenge. I will offer you this …..STAY ENGAGED!!!! Keep reaching out to people. Find people to talk to or spend time with. Do anything you can do to avoid the fear and anxiety of your diagnosis. IT DOES NO GOOD!!!!! It won’t change anything and will only rob you of being you and living your life. You can reach out to me anytime to just talk if you’d like. I check these post every once in awhile……I need these talks myself. Thanks for sharing your story Rebecca…..you’ll be in my wife’s and my prayers.

Did you have seizures? Before the removal of the cancerous brain tumor, seizures were frequent. Since surgery only 1 seizure which may have been caused by a UTI.

Hi Mary, I did not have any seizures. I had feelings of imbalance and partial vision clarity on left side kept bumping into things. They first thought I was hypoglycemic and the ER DOCTOR order CT scan and found the mass (tumor). I’m so thankful for the ER doctor and everyone who has helped me through this challenge. God is with us always and I pray for healing for all ✨🙏

Thank you for your prayers. I had frequent seizures. I was diagnosed with TGA -Transient Global Amnesia. Scan saw the clot in my brain which turned out to be a 4th stage small cell cancerous tumor which was completely removed. I've gone thru radiation, chemo and now immunotherapy. My journey started. 1 year and about 6 months ago.

Hi Rebecca, first let me say I am sorry you are diagnosed with this monster. I was dx in 11/2025. I have completed the chemo and radiation and am now in a clinical trial. I am physically feeling fine most day but do have days of feeling exhausted too. For me, the mental load has been the most challenging part. I have teenage children and am heartbroken I will miss out on a lot of things with them. I have also had some positive mental health changes as well. I am experiencing happiness and joy in a way I have not before all of this. Driving and laughing with my kids can make my cry happy tears. So thankful to be here and experience it, if that makes sense.

Hey Rebecca, My story mirrors yours. Diagnosed with Stage 4 GBM on April 6 and had it “removed” April 8, Honestly I thought when I came out of surgery I wouldn’t be the same but it was just the opposite. I couldn’t even tell I had had surgery. They didn’t shave my head so I had all my hair, I could talk to everyone and walk myself to the bathroom and showered myself. I was really confused about that and the other thing I cannot understand is why i haven’t cried or fallen apart over this, I’m 68 and my children are grown. I have a husband who has been so good to drive me back and forth to radiation. I do chemo with a pill at night. God has given me such a peace. That is the reason i decided to comment……what you said about how you have felt so much love from God and family and hospital staff and friends. I take God and Jesus in to every one of my radiation treatments and they keep me calm. But the love I have felt through it all has been amazing.