CommunitiesChronic Lymphocytic LeukemiaHow to cope with CLL diagnosis and TP53 mutation anxiety?

How to cope with CLL diagnosis and TP53 mutation anxiety?

AP

Community Member

14 days ago

I was diagnosed in Oct. I have been back and forth between denial and anxiety. I still am not sure if so much. So many test and procedures. On my abdominal scan, they saw ovarian cysts and a large mass in my pelvis wall. On Nov. 14 i had a hysterectomy removing ovaries and tubes along with the mass. Everything was benign so that was a relief. I had a mammogram today and will get the results next week. To add a big curve ball to the CLL, I have TP53 mutation which is poor prognosis and high risk. Not sure how I can take. I'm currently on WW, but I really feel that is to check out other things and take care of the surgery and recovery. Next comes the treatment and the cost. Need thoughts from others and how to deal.

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