Anyone else diagnosed with lower esophageal cancer?

My diagnosis was the same about a year and a half ago … how is it going for you?

Same cancer for me. 1 year 8 months ago. Physically back to doing what I used to do. Digestive system ok. Fried and spicy food and hamburger doesn’t set well. Trouble gaining weight.

My present concern is difficulty swallowing food again. I was already at stage 4 by the time we discovered the adenocarcinoma tumor in my lower esophagus 1 yr ago. They installed a PEG Tube in my stomach though I never actually had to use it. The PEG tube fell out on its own after about 9 months! One year of chemo treatments plus, a three week regiment of radiation which ceased at the end of July 2025 seemed to help, but I’ve recently noticed that the swallowing difficulty is returning. They have scheduled me for a PET scan and an endoscopy in the month of August. Will let you know what they find. 

I was on 2 chemotherapies as well as immunotherapy as i was diagnosed as stage 4 as well since it had spread to lymph nodes. I am down to one type chemo and immunotherapy every other week. I have had 2 stents placed that helped eating for a bit but currently without a stent . Sometimes food gets stuck which is the main issue I’m having. They are suggesting i get the surgery to remove that part of my esophagus but sounds very invasive so not sure what to do.

I had the surgery (esophagectomy). Very invasive, 8 hour plus surgery with 2 surgeons. 12 day hospital stay, 3 month recovery to be able to do stuff again. A couple more to feel normal. I sleep at a 30 degree angle to avoid acid reflux at night. I can eat and swallow anything again. I eat or snack 4-5 times a day ( stomach is now half size) to try to maintain weight. Dehydration can be an issue. Hard to eat and then drink at each meal.

I am t2N0 m0 chemo and radiation and surgery 9/4. Its minimal invasive so only 4 hours. I eat fine, haven't had any symptoms

Welcome to this supportive community! Many members here share similar experiences with esophageal cancer diagnoses and understand the journey ahead. This community offers a valuable space to connect with others who truly get what this experience is like, share insights about treatments and side effects, and find encouragement during challenging times. Feel free to explore the discussions and don't hesitate to ask questions or share your own experiences as you navigate this path.

I was diagnosed in August with the same thing. Stage 3 as it was in 2 lymph nodes. 8 rounds of chemo then pet scan to figure my options. Im in the middle of round 4. 3 kinds of chemo at the cancer institute then they send me home with a chemo ball 4 24 hours.