Communities›Esophageal / EG Junction Cancers›How do I get through the side effects after my first round of treatment?

How do I get through the side effects after my first round of treatment?

DC

Community Member

7 months ago

Treatment one is killing me. I had my first round Monday and Tuesday. I hit a wall Tuesday night and can’t seem to get over it. I am very limited on pushing fluids through because of tumor in esophagus so I’m limited to the jtube and it’s such a hassle that I haven’t even started it today. Does this get any better

10 comments
Comment
CA

Community Member

7 months ago

The first round of treatment can be incredibly challenging, and it's completely understandable to feel overwhelmed right now. Many people in this community have found that staying consistent with nutrition support, even when it feels like a hassle, can help with recovery between treatments. Consider reaching out to your care team about managing side effects and getting the most from your j-tube - they may have specific strategies that could make things more manageable for you.

1
BO

Community Member

7 months ago

I completely agree about reaching out to your care team - they might also be able to connect you with a nutritionist who specializes in j-tube management to make the whole process less overwhelming.

BO

Community Member

7 months ago

I also found my first round not great It got better and now I am out 22 years God bless

2
DC

Community Member

7 months ago

I got some rest last night and that helped. Still very weak and tired. Definitely not up to making serious decisions

1
BO

Community Member

7 months ago

Try to keep track on a schedule as to how you feel after your treatments. It looks like I found that after about a day or two I started feeling better. So I planned my schedule to try to do things a day or two after the treatments

0
DC

Community Member

7 months ago

Sorry for not posting more. I have started to feel better especially yesterday and today. I have been working with my oncologist and she is going to decrease the amount by just a little. I want as much as I can stand without doing to much Anyway I hope everyone has a wonderful holiday and safe travels. Next round Monday and Tuesday

2
BO

Community Member

7 months ago

Great news Thank you for keeping us posted I wish you a great next week Bob

2
JM

Community Member

3 days ago

David, how are you doing?

DC

Community Member

3 days ago

I’m still fighting. Esophagectomy is off the table because of metastatic/ spread to liver I’ve just finished a second round of chemotherapy along with 20 some odd radiation treatments to GE junction. Will hit the little spot on liver in a couple of weeks but I’ve got to have a break as these treatments have about taken me away. I also tripped on my feeding tube hose and jerked it completely out which required a two night hospital stay because the premadonna interventional radiologist don’t work on the weekends and then lied to me Sunday morning and promised that they would reinstall the j tube first thing Monday morning, I went back at 4:45 pm. Needless to say between being off the feeding tube and nothing after midnight by mouth I was a very unhappy patient

JM

Community Member

3 days ago

Every time I go for treatments David, I see quite a few people having a very rough time. It saddens me. I watched my Mother go through chemotherapy due to stage 4 breast cancer. First treatment almost took her out. I hope your situation has a good ending David. At first, the plan for my situation was FLOT chemo, four round, followed by surgery, then four more rounds. My biomarkers showed that I have a very rare gene that allowed me to dodge chemo, and get immunotherapy alone. Thank you for responding David. I see messages like yours from months ago, and it troubles me. Stay Strong. And I sure hope you don’t have anymore stumbles that cause even more trouble.

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