CommunitiesHER2+Long-term body pain after TCHP chemo treatment - anyone else?

Long-term body pain after TCHP chemo treatment - anyone else?

RO

Community Member

14 hours ago

Hi everyone, I'm wondering if anyone else is dealing with long term pain after TCHP treatment? I finished 6 rounds of chemo in Aug '25 and am on my last 2 HP treatments (all of it every 3 weeks for a total of 1 year) I had stage2 HER2+ hormone neg breast cancer with no lymph node involvment diagnosed @50 yrs. I had a double mastectomy and was declared complete response/cancer free shortly thereafter. Starting in October 25 (chemo ended August 28th '25) I began experiencing pain in basically my entire body. It was very bad at first, but now is ever present but some days are worse than others. It is manifesting as what I can only describe as body aches like when you have the flu. It's in my upper thighs, my hips, my forearms and upper arms, my shoulders, my wrists and hands feet and ankles along with tingling and extremity numbness. My knees have osteopenia and they HURT. I can't get up off the ground and sitting for prolonged periods has me limping and in pain. I feel like I'm a hundred!! Also now my hands and feet randomly cramp up like a Charlie horse and I find them stuck and painful. Basically my whole body feels sore and achy and locked up like the tin man. I've had blood tests for inflammation markers and a bone density test and they show nothing. I've even now developed severe tendonitis on one wrist which is incredibly painful.Oh, and my scalp feels like it's on fire too! My doctors don't seem too concerned with this but of course I am! Is ANYONE else experiencing pain 6+ months out of chemo? At this point we're just waiting to see if it subsides after immunotherapy ends but as you can imagine I fear it's something serious!

1 comment
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CA

Community Member

9 hours ago

Many people in the HER2+ community experience lingering side effects months after completing treatment, and the symptoms described sound challenging to navigate. It's encouraging that blood work and bone density tests have been done, and hopefully connecting with others who've had similar experiences will provide both reassurance and practical tips for managing these ongoing effects.

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