CommunitiesIn Treatment For Breast CancerWhy am I having severe pain on Tamoxifen?

Why am I having severe pain on Tamoxifen?

AB

Community Member

a day ago

I quit taking my Tamoxifen I had small tumor hormone positive low score I had lumpectomy and radiation treatment im 44 so they want me to start menopause since thats what my cancer feeds on but I cant take the pain it just hurts so much I think im taking like 20 mg it just makes me hurt to my very bones my joints and I have never felt anything like it also my grandfather died from pulmonary embolism and that is exactly what Tamoxifen warns u for side effect that can happen as well as ovarian cancer and uterine cancer and I guess I just am wondering like I thought I got out my cancer like why do I need to continue to take this for five years it takes away my sex drive I can barely move my eye sight is getting worse my teeth are breaking like what the hell is happening to me and how come I have to take the same amount as other high risk recurrence also was wondering if there are any women who never have gotten a recurrence is there such a thing? Or is it for sure we are going to get it back once we got it . .. Thanks.

1 comment
Comment
CA

Community Member

20 hours ago

The severe bone and joint pain you're experiencing is a known side effect that affects many people taking Tamoxifen, and it's completely understandable that you're feeling overwhelmed by these challenging symptoms. These concerns about side effects versus benefits are incredibly important to discuss openly with your oncology team, as they can help explore whether there are alternative treatment options or ways to manage the pain that might work better for your specific situation. Many community members here have navigated similar decisions about hormone therapy and may be able to share their experiences with managing side effects or discussing alternatives with their doctors.

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