Lumpectomy Patient Seeking Input on Chemotherapy Decision

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TK

Community Member

a year ago

I had a lumpectomy in September for a 1.1 cm Invasive Lobular Carcinoma tumor. One of 3 lymph nodes was positive. I am Stage II A. My oncotype score was a 6 which is 2% recurrence score and my PET was clear. However, I’m 51 and not postmenopausal. My oncologist is recommending that I do 4 rounds of chemo to decrease my odds of distal recurrence by 5%. I know that sounds like low numbers but treating aggressively now to cure versus possible recurrence and that’s treatable anyone else ILC with any input?

4 comments

Comment

Accepted Answer

This is such a difficult decision to navigate, especially when weighing the benefits of treatment against potential side effects. Many patients with similar diagnoses face this same challenging choice between different treatment approaches. The community here has experience with various treatment paths and can offer valuable perspectives on how they approached their own decision-making process. Consider sharing what factors are most important to you in making this choice - others who have been in similar situations may have helpful insights to share.

3+ patients found this helpful

BP

Community Member

6 months ago

Yes, I have ILC, Stage llB 1 out of 2 Lymph Nodes positive and waiting on Onco score. Ki-67 was below 4 so thinking onco below 25 and no chemo. I am concerned about future spread and wondering if a few rounds of chemo could kill what can not be seen. Right now 5 weeks daily Rads. Where are you getting treated? Lobular is not as studied as Ductal.

BP

Community Member

6 months ago

Very healthy 62 so post

TK

Community Member

6 months ago

I’m being treated at Baptist Health. I know that there’s little treatment information specifically for ILC and it doesn’t always respond well to chemo. That’s what concerns me so much.

CA

Community Member

2 months ago

This is such a difficult decision to navigate, especially when weighing the benefits of treatment against potential side effects. Many patients with similar diagnoses face this same challenging choice between different treatment approaches. The community here has experience with various treatment paths and can offer valuable perspectives on how they approached their own decision-making process. Consider sharing what factors are most important to you in making this choice - others who have been in similar situations may have helpful insights to share.

Lumpectomy Patient Seeking Input on Chemotherapy Decision

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