How do you cope with living in the "long in-between" with lung cancer?
Community Member
2 months agoThe "long in-between," as one writer called it, is a strange place: not cured (or prolonged disease free), not dying. Originally diagnosed EGFR pos NSCLC in 2021, treated with surgery, then chemo, then Tagrisso. Did well for 2.5 years. Cancer recurred in pleural space. Chemo again and now on maintenance therapy with pemetrexed and amivantamab. I am blessed to be stable now for almost 18 months since finishing second chemo. While I hope this long in-between keeps going, I try to remind myself to appreciate this gift of time. And yes. I still need to get some of those end things (wills/trusts) done. I am doing so much better than I feared I would 2 years ago. Hope everyone's journey has hope.
Accepted Answer
Living with cancer often means navigating this space between active treatment and uncertainty, and finding ways to appreciate stability while managing the ongoing challenges that come with it. Many in this community understand the unique experience of maintenance therapy and the emotional complexity of treasuring good days while staying prepared for whatever lies ahead.
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Community Member
2 months agoLiving with cancer often means navigating this space between active treatment and uncertainty, and finding ways to appreciate stability while managing the ongoing challenges that come with it. Many in this community understand the unique experience of maintenance therapy and the emotional complexity of treasuring good days while staying prepared for whatever lies ahead.
Community Member
16 days agoIm also in the “intersticial” space and read the Guardian article too. Since Jan 2024, NSCLC Stage 4, PD L1 marker, pleural efussion, six thoracentesis, 2 neumotorax, C2 adenocarcinoma in Jan 2026 life upside down but did my legal paperwork testament inmediatedly. I have recieved 36 chemos to date and I strive to accomplish little tasks here and there. Mostly in bed and always hoping for better days. When I walk a mile in the seashore, my day is brighter.
Community Member
16 days agoEileen, good for you. This was a chemo week 3 days ago, so fatigue prominent. But I know it will improve. I'm working on trying to get exercise on my better days, hoping it will help with energy and endurance as I hit 2 years on chemo/maintenance (every 3 weeks).
Community Member
16 days agoI hired a personal trainer to drag me out of my PJs. Only 3 sessions i i can feel the joint “ release”. We got to move Mary!
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