CommunitiesIn Treatment For Non-Small Cell Lung CancerIs Anyone Else Taking Keytruda?

Is Anyone Else Taking Keytruda?

FE

Community Member

5 months ago

Anyone else being infused with Keytruda. I’m having a lot of problems with the side effects.

15 comments
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accepted answer

Accepted Answer

Managing side effects during treatment can be really challenging, and connecting with others who are going through similar experiences often provides valuable support and insights. This community has many members who understand the complexities of lung cancer treatment, so sharing specific details about what side effects are most troublesome might help others offer their experiences and coping strategies.

3+ patients found this helpful

CM

Community Member

5 months ago

What are your side effects?? I’ve had chemo and the operation to remove the tumor. Next will be immunotherapy. I’ve had thrush since the last chemo which was the middle of April, so about three months. Struggling to get rid of it.

1
FE

Community Member

4 months ago

Kettuda had destroyed my life. All the side effects listed for Keytruda I have. Karpul tunnel on Both hands, very weak no strength, every body joint weryweak. Look up this drug and see all the side effects. Be careful.

1
CM

Community Member

4 months ago

I've had 14 Keytruda infusions. The only side effect has been occasional diarrhea. I've controlled with Imodium. My stage 4 cancer was widespread and inoperable when treatment started. It has almost completely disappeared. The original tumor continues to shrink and we will continue Keytruda as long as it continues to produce results. My PD-L1 was 90.

2
FE

Community Member

4 months ago

Good luck.

LA

Community Member

4 months ago

I have been on Keytruda for 2yrs and haven't really had any side effects

1
CM

Community Member

4 months ago

Lavonna- Is the Keytruda still reducing the malignancy, or preventing its. growth/spread?

FE

Community Member

4 months ago

I don’t know.

1
JG

Community Member

3 months ago

Had 3 weeks of radiation for stage 3 lung/lymph nodes, then 3 weeks later started Keytruda. Have had 2 infusions with minor side effects. Next month I will finally have another scan to see if the radiation worked. I’m supposed to have infusions every 6 weeks for a year.

MA

Community Member

3 months ago

Was diagnosed with Stage 4 NSCLC last September. I had 4 rounds of chemo and immunotherapy, then went to Keytruda only. I will continue for at least another year, with treatment every 3 weeks. The results have been amazing for me, as my cancer is genetic. When my oncologist saw the results of my molecular profiling, he said he was very hopeful that it could be very effective. My cancer continues to shrink.. I will have a PET Scan soon, and am staying positive. Side effects have been minimal; mainly joint discomfort and a bit of lethargy. But I'll take that instead of the alternative. I'm very grateful 🙏🏼

1
TK

Community Member

2 months ago

Diagnosed with Stage 4 NSCLC my had 4 rounds of Chemotherapy with Keytruda started Keytruda only in August 2024 my PDL -1 was 0 zero had a tumor in soft tissue of Back May 2025 surgery my removed otherwise my lung lesions shrunk significantly and recent scan in early September was clear no real side effects maybe tired sometimes Brain MRI next month Hang in there Side effects hopefully will subside

2
FE

Community Member

2 months ago

Good luck Tommy

2
CA

Community Member

2 months ago

Managing side effects during treatment can be really challenging, and connecting with others who are going through similar experiences often provides valuable support and insights. This community has many members who understand the complexities of lung cancer treatment, so sharing specific details about what side effects are most troublesome might help others offer their experiences and coping strategies.

RB

Community Member

19 days ago

Been on Keytruda for over a year after 16 radiation treatments on my spine. PET scan last month showed I’m in remission! I also had mouth sores and thrush, overall weakness, and loss of taste. Lost 50 pounds mostly I believe due to lack of taste. For me, Keytruda works.

BS

Community Member

13 days ago

Can you ask for infinzi? Everyone's chemistry is different but it worked for me for the most part.

FE

Community Member

13 days ago

I’ll ask my doctor, thanks.

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