Has anyone participated in NSCLC research studies or focus groups?

Research participation can be a meaningful way to contribute to advancing care for future patients while potentially gaining insights into your own treatment journey. Many community members have found value in sharing their experiences through focus groups and studies, often appreciating the opportunity to have their voices heard in improving patient care. It would be wonderful to hear from others who have participated in similar research - their perspectives on what aspects of the patient experience they feel are most important for researchers to understand could benefit everyone navigating this path.

Thank you for sharing Carolyn! We are so grateful you are a part of this community.

I also have NSCLC adenocarcinoma and was diagnosed in November 2024. I haven’t been involved in any research studies yet but would consider it. I have been through many rounds of chemo, radiation and have been taking Tagrisso. I had to stop chemo due to the negative effect on my kidneys but am now trying Gemzar. I got through the first round but had to stop because my WBC tanked. We will try again next week but I am a bit frustrated and wondering if anyone else has a similar experience

Now I have some kind of pneumonia so I have to stop immunotherapy for now. I'm so tired of isolation and not knowing what's coming next.. thanks for a response..