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a month agoI was diagnosed with stage IIIC serous carcinoma of fallopian tubes in January of 2025. I underwent chemo, radical hysterectomy, more chemo and now currently on Avastin. This last week my blood results showed a rise of my PSA (6 to 13 since Oct) and my Natera blood draw was positive for my cancer dna in my blood (it was negative in Oct). So, now I have another ct scan before my next visit in March. I am not sure if I have symptoms because I am not really sure what my new normal is supposed to be since having hysterectomy. I do not have the complaints that I had when i first went to the doctor in Dec of 2024 (bloating and constipation). At one point I was so bloated I looked 8 months pregnant. I have many aches and pains that vary from day to day. I have some fatigue but nothing overly concerning. Of course I would dread doing chemo again but I know chemo worked. One thing I wonder about is why radiation isn’t considered for our type of cancer? Not that radiation is wonderful just curious about it. Anyway, I have a great care team and so far my insurance has been wonderful as well and my out of pocket has not been too bad. Anyway, happy to connect with others and just hear what others are experiencing.
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a month agoRadiation therapy is less commonly used for fallopian tube cancer because these cancers often spread throughout the abdominal cavity rather than staying in one specific area that radiation can effectively target. The treatment approach typically focuses on surgery and chemotherapy since fallopian tube cancers tend to behave similarly to ovarian cancers. It sounds like you're being incredibly proactive by staying on top of your monitoring and working closely with your care team - those rising markers and positive blood tests are definitely worth the additional imaging you have planned. Many others in this community have navigated similar treatment paths and concerns about recurrence, so hopefully you'll hear from people who can share their experiences with follow-up care and what to watch for as you establish your new normal.
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a month agoI've actually wondered about this exact same thing - why radiation isn't part of the treatment plan for our type of cancer when it seems to help with other cancers. Thank you for asking this question because I didn't even know who to ask about it!
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13 days agoI asked my oncologist this and she tried explaining it like this. It would cause more harm because something is in the blood stream and they would have to cover like a huge part of the body. Ask your doctor. Mine explained it but it’s been a while I don’t think I can really explain it or do it justice to explain. Also I had a recurrance which has rendered more challenges. But I am on chemo for 30 minutes every 3 weeks as a maintenance because after the chemo she did the biopsies on everything and was unable to find any cancer but natera is showing something it’s very low. It was at 0.0 now it’s at .36 and it goes up and down so she wants to be proactive. The down side for me is having to do this for at least 2 years. My most recent problem is headaches and neck pain. She’s requesting the port to be removed to see if that will take care of the problem since my problems have been primarily the port. I’m good with that and some of the headaches and pain has subsided since she made that decision. My cardiologist said the headaches could be from stress and all of it makes sense. I’ve been scanned - head, chest, pelvic and a couple of EKGs. All is good so now to remove the port.
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