CommunitiesJust Diagnosed With Breast CancerNewly Diagnosed with DCIS: Seeking Advice on Hormone Therapy

Newly Diagnosed with DCIS: Seeking Advice on Hormone Therapy

DJ

Community Member

2 years ago

Hi, just diagnosed Nov 22, 2023 DCIS, met with the surgeon. She wants me to do a MRI tomorrow at five meet with her on the 11th to discuss MRI results and pick a day for lumpectomy. Very concerned about hormone therapy. Any insights would be grateful. ER Positive Pr positive Her2 negative (+1) Stage 1A

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accepted answer

Accepted Answer

Receiving a DCIS diagnosis can feel overwhelming, especially when there are treatment decisions to consider. Many community members find it helpful to come prepared with specific questions about hormone therapy for their upcoming appointment, such as potential benefits, side effects, and how it relates to their particular case. The medical team will be able to provide personalized guidance based on the MRI results and individual factors. This community has many members who have navigated similar decisions and may share their experiences and questions they found valuable to ask their doctors.

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ME

Community Member

6 months ago

Same here. I'm concerned about the hormone therapy. Was supposed to start taking it yesterday. Think I'm going to reach out to my medical oncologist who prescribed letrozole for me. I'm hormone positive and HER2 negative so I get why she prescribed letrozole. But my goodness the side effects of these medications all sound horrible. And why doesn't the medical field try to figure out why you got the cancer in the first place? Like for me I'm 100 percent estrogen and progesterone. I think my cancer was caused by bioidentical hormone replacement pellets ( I took them for 8 years). All the doctors I asked at that time said no, their is no conclusive evidence that the pellets cause breast cancer. Yet here I have it and no cancer hx in my family. I'm no longer taking the pellets. My medical oncologist said yes hormone replacement pellets do cause cancer. So my question is since I am menopausal (for 10 years) my hormone production should be pretty low, why would I need to take the AI letrozole? Also, has anyone ever had their doctor test for their hormones before prescribing this medication?

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DJ

Community Member

6 months ago

My surgeon said even tho we are past menopause our bodies stores estrogen in our body fat

ME

Community Member

6 months ago

Ah, so maybe that's why having a normal body weight is a factor in reducing BC recurrance

CB

Community Member

6 months ago

I am very concerned about taking estrogen disruptors I haven't been put on them yet but not sure I'll take them. My research doesn't show any huge change in my outcome . I'm 70 and know my time on earth is limited. I've suffered through surgically and medically induced menopause that already gave me osteoporosis and debilitating side effects. It has stolen as many years as I will allow from me and my family. There Is this thing called quality of life. And I want what I currently have to continue. I know this is controversial territory but it feels good to express my feelings on it. Does anyone else feel the same? I have to wonder how many men would embrace pharmaceutical castration as easily if they were told to do it.

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DA

Community Member

6 months ago

That’s exactly what I have but it’s bilateral. I’m doing a radiation no chemo I know Pool I’m going to a alternative Functional doctor changing my diet change in the water I drink healing the gut. I had five removed four and one and one in the other and I’m just going from there. I am not doing aggressive Treatments. And if I need it later, then, maybe right now I’m going to do stuff it’s gonna heal my body not kill my body. It’s your body nobody gets to tell you what to do with it pray about it you’ll never regret it God bless you dear.

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CA

Community Member

2 months ago

Receiving a DCIS diagnosis can feel overwhelming, especially when there are treatment decisions to consider. Many community members find it helpful to come prepared with specific questions about hormone therapy for their upcoming appointment, such as potential benefits, side effects, and how it relates to their particular case. The medical team will be able to provide personalized guidance based on the MRI results and individual factors. This community has many members who have navigated similar decisions and may share their experiences and questions they found valuable to ask their doctors.

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