What should I expect when cancer spreads after hysterectomy?
Community Member
22 days agoSorry for the length but it has been quite a ride for me. I am a 66 year old female. 2 1/2 years ago I was diagnosed with EIN after an abnormal pap and biopsy. I was scheduled for a hysterectomy and oophrectomy. This was completed and the oncologist Dr Hummell Corewell health did the surgery. He did have a difficult time as there where multiple adhesions to the bladder and rear of my pelvis. I was healing fine and the results pathology came back. I had EIN but I also had a sarcomo of the uterus cervix fallopian tubes. This was totally unexpected. The tumors were labeled as UTROSCT and the margins were ppositive I had radiation therapy and entered surveillance. I had about 3-4 ct’s during this time, all basically normal. About 9 months ago I started having an increase in back pain. My primary care provider at the VA NP Alvaroda ordered an MRI of my whole spine. I had a history of back pain and I believed that it was just getting worse. It came back concerning for malignancy on multiple vertebra and pelvis.After a while getting all the paperwork and insurance I had a another CT also normal, and A biopsy of one of the most affected vertebrae T5. It came back positive for cancer, the pathology was believed to be from the UTROSCT from before. I was started on Letrozole and a bone strengthening infusions. I thought that was it. About a month after that I got a call from Dr Hummel, He had submitted the biopsy for further testing, Caris, I think. That pathologist said that it was not the UTROSCT but it was most likely a lobular breast cancer and I needed a breast MRI. This was just after I had had a clear mammogram. I had the MRI and it did indeed show several suspicious areas in my left breast. One 9 cm 2.4 cm around. And another 6 cm lesion. It also showed lymph nodes enlarged, sternum and ribs involvement and enlarged lymph nodes in my abdomen and involvement in my heart. I am scheduled for a breast biopsy and just had a pelvic, abdominal and chest CT which was again fairly normal, They saw small things but it generally looked benign. I am so many things, confused scared wondering what is the extent of my disease that they keep missing?
Community Member
21 days agoWhen cancer spreads to bones after initial treatment, it can cause pain and requires different approaches like hormone therapy and bone-strengthening treatments to help manage the disease and symptoms. The uncertainty and conflicting test results can feel overwhelming, but having an experienced medical team working through the diagnostic process step by step is helping to create a clearer picture for better treatment planning.
Community Member
14 days agoHi my name is Mary. Believe when I tell you u’re not alone. I started out with breast cancer 13 yrs. ago and went 8 yrs. In remission. But during the 8 yrs I insisted on my tumor markers being checked and pet-scan every 3-4 months. Of at the end of the 8 yrs. my tumor markers or going up and I had a pet-scan. There is it was a tumor sitting on T7 on my spine. At the time that was found I was in bed and reached over to get something for my puppy and fell on the marble and shattered my femur. I couldn’t believe it. Than about the same time that happened I had had a pet-scan done they found a shadow on my kidney. I guess u know what came next? 2 mons. after I got out of the hospital with hip I was right back there cause I needed to have tumor removed. Thank God he got it all and everything has been fine since. I had to 20% of my kidney removed. But no kind of treatment afterward. Now u’re probably asking urself why did I just tell u all that? Cause I don’t want to feel u’re alone cause ure not. Anytime u want to talk or vent im here. I wish u a lot of luck and I’ll pray for u. Mary❤️
Community Member
9 days agoBeautiful. Sharing. Mary. You are a warrior and an inspiration
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