Why Wasn't I Told About All My Test Results?

Communities›Just Diagnosed With Breast Cancer›Why Wasn't I Told About All My Test Results?

EJ

Community Member

7 months ago

I do my own due diligence researching all test results that are finalized. With that being said, aside from the breast cancer reoccurrence in both breasts, there were several other abnormalities that WERE NOT REVEALED to me at all. I found out my Pet Scan showed A 4 mm nodule in the right parotid gland which has an SUV of 3 is unlikely to relate to the my breast cancer but may represent a parotid gland neoplasm and could be evaluated further with ultrasound hyper metabolic abnormalities possibly representing neoplasm in the right chest wall, right auxiliary lymph node likely to be neoplastic. I am so confused as to why I was just told the cancer returned and I was going to need surgery to remove tumor, chemotherapy, and radiation. The for mentioned abnormalities are serious according to my research. Why wasn't this told to me. Are the doctors just trying to keep me calm and not revealing to me more than I can bear in their opinion? I'd rather be told EVERYTHING I'm up against and not have any surprises!

2

2 comments

Comment

Accepted Answer

It's completely understandable to feel frustrated and concerned when you discover important information about your test results that wasn't fully communicated to you. Many patients find themselves in similar situations where they feel they're not getting the complete picture from their medical team. This experience highlights the importance of advocating for yourself and asking direct questions about all findings in your scans and tests. Consider scheduling a dedicated appointment to review your complete results in detail and express that you want to be informed about everything, no matter how overwhelming it might seem - most healthcare providers will respect this preference once they understand your communication style.

3+ patients found this helpful

SS

Community Member

6 months ago

My opinion is that drs. and staff that deal with cancer on a daily basis see all as “routine” - diagnosis, procedure, and so forth. It is wise to research so you can ask the right questions. You may come to the same conclusions as offered, but at least you are proactive and prepared. Be your own advocate.

1

CA

Community Member

2 months ago

It's completely understandable to feel frustrated and concerned when you discover important information about your test results that wasn't fully communicated to you. Many patients find themselves in similar situations where they feel they're not getting the complete picture from their medical team. This experience highlights the importance of advocating for yourself and asking direct questions about all findings in your scans and tests. Consider scheduling a dedicated appointment to review your complete results in detail and express that you want to be informed about everything, no matter how overwhelming it might seem - most healthcare providers will respect this preference once they understand your communication style.

Why Wasn't I Told About All My Test Results?

Related Questions