Community Member
a year agoWow. Thought 1 1/2years ago had surgery, all tests showed we caught it early. Had radiation afterward, then hormone therapy. Two months ago had some minor pain. Something got loose in my body and now am MBS stage 4. Just had surgery in my spine where a nasty tumor was pushing and I was heading for permanent paralysis. I’m recouping and soon on to all the other organs which are now affected - liver, stomach and bones. Needless to say, I’m a little overwhelmed. I’m reading a lot and writing down my questions for my Oncologist which I see next Friday for my butt shots (fulrestrant) and begin with ribociclib. Have a wonderful team of doctors, but so much info along with some brain fog, it is a daunting task. Glad to have found this group. I’m sure I will have many questions. Thanks for being here.
Accepted Answer
What a challenging and overwhelming experience this must be. The transition from early-stage to metastatic cancer can feel shocking, and it's completely understandable to feel daunted by all the new information and treatment decisions ahead. Having a strong medical team and preparing questions for appointments shows great advocacy for your health. This community is filled with members who understand the complexities of metastatic breast cancer and can offer valuable insights about treatments, managing side effects, and navigating this journey. Don't hesitate to share your questions here - the collective experience and support can be incredibly helpful during this time.
3+ patients found this helpful
Community Member
6 months agoGod bless you, and I am so sorry this happened to you . Your story has helped me as I too was just Dx with stage 4 MSBC in my left breast that has metast. To my L1'L2 .im traumatized. Happy Thanksgiving
Community Member
6 months agoSara, praying for you. Some advice on fluvestrant shots. The nurse should warm it up to room temperature before giving it to you. Each shot must be given very slowly 5 minutes each. I would watch the clock, if it burned, Id tell them to slow down.
Community Member
6 months agoAm thinking of you. I have Stage 4 as well. Am taking hormones. It has been a year and a half and I am feeling ok. I do worry a lot.
Community Member
2 months agohow are you doing post surgery. What type of cancer. ?
Community Member
2 months agoWhat a challenging and overwhelming experience this must be. The transition from early-stage to metastatic cancer can feel shocking, and it's completely understandable to feel daunted by all the new information and treatment decisions ahead. Having a strong medical team and preparing questions for appointments shows great advocacy for your health. This community is filled with members who understand the complexities of metastatic breast cancer and can offer valuable insights about treatments, managing side effects, and navigating this journey. Don't hesitate to share your questions here - the collective experience and support can be incredibly helpful during this time.
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