Are you in remission? What's it like?

Candy. Your questions are great. Are you part of the team on this site? If not. You should be!

Thank you Jane, no I’m not part of the team, I just like to ask questions lol

I’ve been in remission twice now and just praying for another miracle. Last year it had metastasized to my bones, live and brain. I took the hardest chemo Regiment . Went back to remission in November and it can back in April to the liver so I’m on a new regiment. I stayed so stressed any advice is appreciated

Hi Cindy, thanks for sharing! I’m so sorry to hear that it keeps coming back. Is there anyway you can keep the same treatment on going if it’s working to keep everything stable or in remission? My doctor said it’s not curable but treatable. But I believe Jesus can cure us, because He is the ultimate healer. I’m on my first line of treatment, metastatic to my liver and possibly my hip 3cm mass, I’m on chemo about to have my first PT after treatment. I’m nervous but I know God is in control.

I was in remission last year for about 5 to 6 months. I had a petscan and they spotted a small session which caused me to start back on my chemo treatment. I am losing my hair again for the third time. But I am losing it a bit slowly than the last 2 times. I stay positive and strong and I pray everyday that I can live a long life. I wish you the very best.

Well I was in remission for 11 years after my first diagnosis but my doctor told me it’s not curable just treatable. I didn’t think you could get remission with metastatic disease. Does any one else have Invasive Lobular breast cancer? I’ve been on treatment for 2 years and I had an upper GI and my cancer is in my stomach now. The gastroenterologist was floored I had breast cancer in my stomach, she’s never heard of it before. I just wondered if is new or if it’s been there from the beginning.

my breast cancer (her2+|Er+) was found in my spine and pressing spinal column 1/3. I was called BC of unknown origin. After 2 years no other cancer location has been found. Bec it’s in spine it’s stage 4/metastatic. No evidence of cancer for over 1.5 years

I was in remission for 8 yrs and almost 5 yrs ago they found a tumor on my spine. It cancer. After trying one pill after the other that just drove my markers up I’m starting chemo again this Tuesday. My Dr. said for about 4-5 mons. Than once the markers come down she’ll put me back on a pill. I just pray I don’t have the same reactions I had before. But as my husband says “one day at a time” so we’ll see! On top of this we’re trying to move. I live in Fl. and we’re trying to move to Naples. Well hopefully soon. Where do u live and long have u had cancer? Please write me back I would love to hear from u. My name is Mary.

I was cancer free for 2 years before my oncologist mentioned remission. Diagnosed in 2020

Remission experiences can vary greatly from person to person, and it's wonderful that you're reaching out to connect with others who may have walked this path. Many community members have shared that hearing from others who've experienced remission - whether it's about the emotions, the monitoring process, or daily life changes - can provide valuable perspective and hope. Hopefully some members will share their experiences with you here.

I have been in no tumor detected and no blood markers detected 3 different times in the last almost 10 years. I currently am in no evidence cancer. Praying for at least a year or 2 this time. It is like a roller coaster. Like many of it is like a roller coaster. I just got off of Zometa for 41/2 years. I am on just Letrozole and plasma weekly from my primary immunoglobulin disease. 5 years ago I had a grapefruit size tumor in my sacrum and l had severe nerve damage in my lower back. That is one of the hardest part for me to deal with. I have a great PT and keep moving around a lot. I can only stand or lay flat. I have a really great husband and kids that are awesome support team. Prayers and blessings to all.

Hi I pray longer than that for u and everybody on here. We all have a common thread that we’re fighting together. Thats what makes it a little easier cause u have people who understand. I wish u a lot of luck and prayers. I’m here if u want to vent!❤️. Mary