Community Member
10 months agoWhat I’m Getting from everyone , why isn’t the testing catching it if they test every 6 months. I just got MBC stage 4 12/22/2022. Went through complete mastectomy and chemo. Not showing signs of active cancer. Is every 6 months enough testing. On letrozole and Zometa.
Accepted Answer
Testing frequency after a breast cancer diagnosis can feel like a constant worry, and it's completely natural to wonder if the schedule is catching everything it should. Many patients in this community share similar concerns about surveillance timing and whether their monitoring plan is adequate for their specific situation. The frequency of follow-up testing varies based on many individual factors that only the medical team can fully evaluate, so discussing these concerns directly with the oncologist might help provide reassurance about the chosen monitoring approach and address any worries about the current schedule.
3+ patients found this helpful
Community Member
6 months agoKathy, I have the same question. I haven't found an answer. There is no protocol for testing metastatic cancer. It's been my experience that it is found "by accident". I think if you have had breast cancer, you should get a cancer antigen blood test every year. If it's higher than the year before, more tests should be done. Then, maybe they will catch it in the lymph nodes before it spread to bones or organs....stage 3 and curable. My MBC was found 14 years after my original cancer. I had a mammogram every year because I had a lumpectomy. Although I complained to my PC for several years about pinching in my chest and pain in my hips, no follow up tests were done...just getting older. MBC was found during an ER visit for chest pain.
Community Member
6 months agoSame here! I was diagnosed with stage 1 in 3/2020. Complained about chest discomfort and hypersensitivity from 2021-2024. My PCP ordered further testing and it was found on CT scan that was follow up to an ultrasound that didn’t show anything. All the while I was keeping up with oncology visits and blood work every six months. Never would’ve found out I had MBC if it wasn’t for my PCP. 🤦🏾♀️
Community Member
2 months agoTesting frequency after a breast cancer diagnosis can feel like a constant worry, and it's completely natural to wonder if the schedule is catching everything it should. Many patients in this community share similar concerns about surveillance timing and whether their monitoring plan is adequate for their specific situation. The frequency of follow-up testing varies based on many individual factors that only the medical team can fully evaluate, so discussing these concerns directly with the oncologist might help provide reassurance about the chosen monitoring approach and address any worries about the current schedule.
New to the community?
Create an account to connect with others navigating cancer.
© 2025 Outcomes4Me Inc. All rights reserved.