Has anyone experienced breast cancer spreading to bones and bone marrow?

I’m sorry to hear this. I was diagnosed 3 years ago with metastatic breast and it was in my bones in back and hip. Too many tumors to count. Four months of taxotere, herceptin, perjeta and radiation on hot spots led to no evidence of tumors. I stopped the taxotere but continued immunotherapy infusions and scans. That lasted for 2.5 years. Unfortunately they found brain metastases last December which we’ve been treating with success with surgery, radiation, and enhertu . No new growth in bones and brain tumors are nearly all gone. It’s an ongoing journey with lots of twists and turns. I’m grateful to be feeling relatively well and to have been fighting through this for nearly 3.5 years with a great response to standard protocols. I hope for several more.

Jenny, may I ask your age

Deanne, I, too, have MBC in too many bones to count. Since Jan 2016, I've been on HR therapy. First, Ibrance and letrolzole. Next, Ibrance and fluvestrant. Currently, Kisqali and exemestane. Plus, bone therapy Xgeva, Vit D and calcium since 2016. I currently have 1 lesion lighting up on scans. Basically, 3 progressions, I've had radiation to my skull, then radiation to my spine. If the current lesion gets brighter, I'll get it radiated and probably change meds. I just turned 71 and I feel pretty good. I believe you will do very well. Praying for you.

I had breast cancer 26 years ago, chemo and Tamoxifen. A year and a half ago I was diagnosed with metastatic breast cancer with a lump where I had had a mastectomy and a lesion in my liver. I took Ibrance but had too many adverse reactions so stopped. I am taking a hormone and the liver lesion is shrinking very slowly. But I treasure those 26 years where I never worried. If they took images of my mastectomy site, they would have found it much earlier. But they don’t. I am 74.

I feel better being in this group of women who are going through the same thing

I'm on Ibrance and Letrozole now. I had radiation x for 5 days. I have bad pain in my back due to arthritis and bursitis. Now on a steroid for five days which gives me a headache and possible UTI. It just goes on and on. Also a cold

This is such a frightening time, and it's completely understandable to feel scared when facing changes in treatment. Many community members have shared similar experiences with bone and bone marrow involvement, and connecting with others who've walked this path can provide valuable insights and comfort. While waiting for your oncologist's new treatment plan, consider reaching out here to hear from others about their experiences with bone-focused therapies and how they've managed this stage of their journey.