Anyone else dealing with Primary CNS Lymphoma? Looking for support
Community Member
2 days agoIs there anyone on this platform that has Primary CNS Lymphoma(brain cancer) with no other cancers in your body. My mom was diagnosed with that on June 4, 2025 it was hemmoraging and so it forced them to remove it but couldn't quit get it all. So they gave her 10 rounds of radiation. Gave her a 2 month break, she just completed 5 day regimate of chemo pill now we wait 3 weeks then another 5 days of chemo pill. Really dont kno what to expect. Would like to speak with someone who kno of this type of non hodgkin lymphoma
Community Member
2 days agoPrimary CNS Lymphoma can feel especially isolating because it's less common than other types of cancer, so reaching out for connection and support shows real strength. This community has many members who understand the uncertainty and emotional challenges that come with rare diagnoses and complex treatment plans, and sharing experiences with others who truly get it can provide comfort and valuable insights during this difficult journey.
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