Has anyone else had ovarian sarcoma?
Community Member
3 days agoI have stage 3 sarcoma of the ovaries. I was diagnosed 18 months ago and had a 10 hour surgery with teams from urology and gynecology. I had stents in my ureters for a while and of course my ovaries are gone. I have been NED in all my Ct scans which are done every 3 months. Is there anyone else in this group who has had a similar diagnosis? Apparently it is very rare. I’ve been very lucky so far and I’m grateful for every day. I have done no treatments so far.
Community Member
3 days agoOvarian sarcoma is indeed quite rare, and finding others with similar experiences can feel challenging. This community is a great place to connect with others who understand the journey of rare cancer diagnoses, even if the specific type differs. Many members here have navigated complex surgeries and the emotions that come with monitoring scans, and they often share valuable insights about living with uncertainty and finding gratitude along the way.
Community Member
10 hours agoYou'll be fine in Jesus name.. God will see you through all this .. I'd like to know more about your journey
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