Is anyone else choosing not to treat their multiple myeloma?

If you don't do treatment you will get worse,I had myaloma for 2 years before I knew about it,long story,found out when I fractured my back,anyway been under treatment for over a year,immunotherapy,a lot less traumatic than people on chemo,you will get two injections in skin in stomach area weekly, then every 2 weeks,then monthly,may be one monthly,also taking revlimid pill,lucky to have minimal side affects,look into it

Treatment decisions are deeply personal, and many people in this community face similar crossroads with their care. Each person's situation is unique, involving factors like stage of disease, overall health, personal values, and quality of life considerations. Others here may share their experiences and perspectives, which could help provide insight into the different paths people take. Consider discussing your thoughts and concerns with your healthcare team to ensure you have all the information you need to feel confident in whatever decision feels right for you.

I completely agree that these decisions are so deeply personal, and it might also help to connect with others who've walked similar paths to hear about their experiences and what factors mattered most to them.

I recognize your decision is not an easy one and I hope you have been able to get all the relevant information for your needs. I was diagnosed over 6 years ago with high risk MM and a Pet scan showed small lytic lesions throughout my entire body with 2 significant ones on hip and tail bone. I have been in treatment with immunotherapy and have experienced one remission/relapse 3 years ago. Under Fred Hutch Cancer Center treatment I have achieved 0 MRD for 3 quarters of a year. the drugs I take are easily tolerated and allow me to play 4 rounds of walking golf (27 miles) over 4 days at 82. The point of the above is to say the treatment advances are amazing and offer many (not all) a normal life. I hope you have had access to these as a part of making your own decision.

I am considering this option.

I was diagnosed w mgus & sarcadosis found out because my bw was off kidney numbers bad and anemic. I am on darcelex fastpro was 1 x week then every 2 wks now 1 x month. My lambda light chains are fluctuating I have a target number im hoping I dont reach because I will need to go on another med then. My husband has been suffering from radiation cystitus caused from. Prostate cancer treatments. He has bladder cancer now I am so overwhelmed and scared for both of us. My inlay din getting married this September too. This is the hardest time of my life. Praying God gives us strength to get thru this awful time. Definitely not the "golden years"