Are other seniors taking Revlimid experiencing fatigue and brain fog?

Many patients taking this medication do report similar experiences with fatigue and cognitive changes during treatment. These side effects can be challenging to navigate while managing multiple myeloma. Consider discussing these symptoms with your healthcare team, as they may have strategies to help manage them or suggestions for timing your activities when energy levels are higher.

I was on it for 4 regimens ( 4 months 21 on 7 off. ) plus a shot of velcade and dara. Once a week. Everything went pretty good except constipation. Was tired more often but not terrible

Hi, I am also battling multiple myeloma and I had a very hard time on Revlimid. I took it for 5 months 21/7 and had very bad fatigue, developed a blood clot, rash, constipation, and lymphedema. I was off for a stem cell harvest and when they prescribed a lower dose I broke out with a rash on my face and chest. I no longer take it. My maintenance is Darzalex FasPro once a month. I did not have a transplant. We are waiting for CAR T to become covered as a first-line treatment as my transplant doctor is sure I would not handle ASCT. Best wishes for your journey!

Hey marsha sorry to here you had all these issues with the meds. Mine went good Praise God. Im actually in a bed now getting my stem cells harvested. Hopefully it stays in remission. But the car-t is what my doctor calls his golden bullet if it comes back. I've read up good things on car-t . I hope yours goes great and keeps you in remission forever. ( WITH MAN ITS IMPOSSIBLE, BUT WITH GOD ANYTHING IS POSSIBLE. )GOD BLESS YOU SISTER

Hello everyone. I hope you are all doing and feeling as well as possible. It’s hard dealing with cancer while also trying to be brave and strong. At times, our emotions can feel overwhelming. When I started treatment for MM (multiple myeloma), I was put on RVD — Revlimid, Velcade, and Dexamethasone. It was a challenging time, but I learned a lot through the process. I am no longer on it for years now. Oncologist wants to try something new because what I on now is not working.

Yes I am. I get the same thing

I was diagnosed with MM in Sept 2023 and I’ve been taking Revlimid at first every day. Since then I had a stem-cell transplant in Feb 2024 which was deeply exhausting and I was subsequently switched to a lower dose (10mg 21/7). I was tired for a long time and the constipation more or less continues. My oncologist told me that it would take two years before I’d start to feel normal—and he was right. But now I feel quite good and there’s no detectable evidence of myeloma. I can go to the gym and do! Not allowed to ride a bike or play ball … but small sacrifices, right? I live in CA and Silver Script will soon start charging for REVLIMID CAP since it’s the brand name but will apparently cover LENALIDOMIDE CAP, which is the generic name.