Community Member
4 months agoThere is now a generic lenolidomide, alternative for Revlimid. Is anyone using it?
Community Member
4 months agoThis is a great question about treatment options that many in the multiple myeloma community are likely wondering about. Generic medications can offer important cost savings while providing the same active ingredient, so it's valuable to hear from others who may have experience with the transition from brand name to generic lenalidomide and how it's working for them.
Community Member
3 months agoYes ! I just started it this month.
Community Member
3 months agoNot an easy medicine for one to tolerate.
Community Member
3 months agoYes many side effects.
Community Member
3 months agoI am a health care professional for over 30 years, never studied much oncology medicine and I have only read limited information on this medicine, I have lost lots of weight and I am not sure I want to stay on this medication but will discuss it with my doctor.
Community Member
3 months agoI use lenalidomide. I was on 25mgs knocked down to 10mgs. In April of 25, I was diagnosed with failure to thrive. I was taken off all of my meds. They were started back in August slowly. My Dr wanted me back on lenalidomide. He started me back on it at 5mgs. We are taking it one day at a time. The worse thing now, is the pain in my lower back, my hands going numb and the pain and numbness in my feet and legs. I was given Lyrica 25 mgs 3x a day for the pain and numbness in my feet and legs. Started taking Claritin again this morning. I take 50000 units of vitamin D once a week, magnesium 64, 1000 mgs of calcium a day. That's beside blood pressure med, antidepressant, aspirin daily. I started with heating pad again and bought a foot massager recently. I am still not able to lift much and I hate steps
Community Member
3 months agoNo sir I'm on lenalidomide
Community Member
3 months agoMelinda I'm on 25mg now. My lower back hurts if I stand in one place.
New to the community?
Create an account to connect with others navigating cancer.
© 2026 Outcomes4Me Inc. All rights reserved.