Community Member
2 months agoAnyone undergone a stem cell transplant with normal blood counts and no symptoms? I was diagnosed in Nov 2025 with MDS TP53 mutation, rare variant, 80% VAF, and complex karyotype. But my blood count is normal, blasts 1-2% and no symptoms. I've seen 7 docs. They all encourage me to get a transplant now.
Community Member
2 months agoTransplant decisions when blood counts appear normal can feel especially challenging, and consulting multiple specialists shows great advocacy for your health. Many people in the MDS community face similar situations where high-risk genetic features may prompt treatment recommendations even when symptoms aren't present yet. The experiences and insights from others who've navigated comparable decisions could be really valuable as you work through this important choice with your medical team.
Community Member
a month agoWas admitted to Moffitt for BMT last week. Counts was decent however hemoglobin was low and needed transfusions every week. My MDS was diagnosed initially as low grade and increased high grade, which is the reason for the bone marrow transplant. Tough decision to go for a BMT transplant if you’re labeled as low grade as the BMT is quite an intense process to go through. However, the end goal is successful is the BMT is a cure for this blood order disease Good luck to you and God bless Jim
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