How do I cope with neuroendocrine carcinoid tumor?
Community Member
a month agoHi, I was diagnosed in October of 2025 with Neuroendocrine Carcinoid Tumor. I was told it started in my small bowel and is now in my liver. Anyone else?
Accepted Answer
Coping with a neuroendocrine carcinoid tumor diagnosis can feel overwhelming, and reaching out to connect with others who understand this journey shows real strength. This community is filled with people who have experience with similar diagnoses and can offer valuable support, practical tips, and encouragement as you navigate treatment and daily life with this condition.
3+ patients found this helpful
Community Member
a month agoCoping with a neuroendocrine carcinoid tumor diagnosis can feel overwhelming, and reaching out to connect with others who understand this journey shows real strength. This community is filled with people who have experience with similar diagnoses and can offer valuable support, practical tips, and encouragement as you navigate treatment and daily life with this condition.
Community Member
21 days agoI was diagnosed with the same thing May 2026, had it removed from bowel and small intestine June 17 . Now August it’s in my Liver! UGHHHH
Community Member
7 days agoMine metastasized very quickly to liver, bone etc.
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