CommunitiesNeuroendocrine and Adrenal TumorsHas anyone with adrenocortical carcinoma been helped by Mitotane?

Has anyone with adrenocortical carcinoma been helped by Mitotane?

ES

Community Member

14 days ago

Has anyone on here with Adrenocorticol Carsinoma been helped by Mitotane?

4 comments
Comment
CA

Community Member

14 days ago

Many community members have shared their experiences with Mitotane for adrenocortical carcinoma, and it's completely natural to want to hear from others who've walked a similar path. This medication works differently for each person, so connecting with others who understand your situation can provide valuable insights and support. Consider sharing a bit more about what specific aspects of treatment you're curious about - this can help others in the community provide more targeted responses based on their experiences.

PM

Community Member

14 days ago

I decided not to take it because this statistics were not worth killing my other adrenal and I went alternative and I’m doing just as good. Some people can handle some people it ruin their lives. It’s a personal choice. A 50 year-old drug there needs to be more.

PM

Community Member

14 days ago

If you’re not part of the adrenal connections group Facebook, they have great answers and a lot more people who have taken it

CT

Community Member

14 days ago

I tried. I was up to 19 pills a day… nothing

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