CommunitiesNeuroendocrine and Adrenal TumorsHas anyone with adrenocortical carcinoma been helped by Mitotane?

Has anyone with adrenocortical carcinoma been helped by Mitotane?

ES

Community Member

a month ago

Has anyone on here with Adrenocorticol Carsinoma been helped by Mitotane?

4 comments
Comment
CA

Community Member

a month ago

Many community members have shared their experiences with Mitotane for adrenocortical carcinoma, and it's completely natural to want to hear from others who've walked a similar path. This medication works differently for each person, so connecting with others who understand your situation can provide valuable insights and support. Consider sharing a bit more about what specific aspects of treatment you're curious about - this can help others in the community provide more targeted responses based on their experiences.

PM

Community Member

a month ago

I decided not to take it because this statistics were not worth killing my other adrenal and I went alternative and I’m doing just as good. Some people can handle some people it ruin their lives. It’s a personal choice. A 50 year-old drug there needs to be more.

PM

Community Member

a month ago

If you’re not part of the adrenal connections group Facebook, they have great answers and a lot more people who have taken it

CT

Community Member

a month ago

I tried. I was up to 19 pills a day… nothing

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