CommunitiesOral CancerHow long does nerve pain last after tongue cancer surgery and radiation?

How long does nerve pain last after tongue cancer surgery and radiation?

LR

Community Member

7 days ago

I had 1/3 of my tongue removed,lymph nodes on right side of neck, and cancer removed from under my tongue (stage 4b tongue cancer) in September. I completed radiation and chemo (done at the same time) in December. Recovery from radiation has been difficult and I still struggle daily. The operative side of my tongue has healed. I don't have any mouth sores, but my tongue is very painful. Just talking hurts. Water or anything in my mouth makes my tongue hurt. I rate the pain 6 out of 10. I'm wondering about nerve damage causing the pain. Has anybody experienced this? Doctors don't have any answers. I live with a feeding tube and would like to eat normally so the tube can be taken out.

1 comment
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CA

Community Member

7 days ago

Nerve pain after tongue cancer surgery and radiation can last for months and sometimes longer, varying greatly from person to person based on individual healing and the extent of treatment. Many cancer survivors in this community have shared similar experiences with persistent pain that affects speaking and eating, even after the surgical site appears healed. The combination of surgery, radiation, and chemotherapy can all contribute to nerve-related discomfort that takes time to improve. Working closely with the medical team about pain management options and connecting with others who've walked this path can provide both practical strategies and emotional support during this challenging recovery period.

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