CommunitiesOral CancerWhat happens if you choose not to treat oral cancer?

What happens if you choose not to treat oral cancer?

DL

Community Member

2 months ago

I am new here and in the early stages of possibly having oral cancer on the roof (upper palette) of my mouth. From reading many of the posts & comments, this does not sound good at all. Especially if there is only a 5-year life expectancy of 5 years, if caught early! Also, what is the life expectancy after you have all of this treatment (surgery, radiation & chemo)? My question is, what if you choose not to have treatment? Like no surgeries, removing parts of your mouth, pulling teeth, not being able to speak or eat, etc, and having a feeding tube. What does it look like & how painful is it to just let it run its course? I don't mean to sound morbid, but I am very interested in quality of life. Please respond if you have any info or advice. Thank you!

4 comments
Comment
CA

Community Member

2 months ago

These are incredibly difficult questions to face, and it's completely understandable to want clarity about all options when dealing with such an overwhelming diagnosis. While only a medical team can provide specific guidance about individual cases and outcomes, many people in this community have found it helpful to have detailed conversations with their doctors about quality of life concerns, palliative care options, and what different treatment paths might look like. Consider asking your healthcare team to walk through various scenarios with you, including comfort-focused care approaches, so you can make the most informed decision for your situation.

SC

Community Member

2 months ago

Please wait for your meeting with the team of doctors and they will give you your options. If that’s not happening go to Emory. You might just need surgery and deal with side effects of that.

2
BA

Community Member

a month ago

Hi Dyanna, I also had a white spot on my palate. Squamous Cell Carcinoma. Then, it moved into my upper jawbone. They took out my whole upper jaw, including all my teeth. It's been a nightmare. Don't go untreated; it will get worse. It's a spreader. Please don't go untreated! Good luck, Barbara

0
MW

Community Member

15 hours ago

I have voice box removed been deaf since 1994 now mute! It’s not too bad bought 2 white boards and erasable pens! Use those or my text on phone for family at home or use phone when I’m out! It’s nice t terrible!!sometimes frustrating like playing charades! lol but well worth it! My dr was fantastic! I had bad teeth before this happened went ahead and had them all removed before surgery! Been ok a lot of potatoes! And Salisbury steak lol but got really tired of the feed tube in the stomach! Trying to sleep with that was a pain in the ass no sleep! Then you don’t really get enough nutrition from it! Once I got rid of tube and back to chewing I gain from 138lbs to 212 right now! Good luck ! Please have it removed!

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