CommunitiesOvarian CancerHow do others handle nab-paclitaxel side effects?

How do others handle nab-paclitaxel side effects?

AC

Community Member

25 days ago

I have Stage 3c Ovarian Cancer. I had my what I thought was going to be my last Chemo treatment in January. I recently had a CT scan and a PET scan which they found a new mass. Now I'm back to Chemo 3x a week with 1 week break in between. This is different than the first Chemo I was on. This coming week will be my 3rd week on the new Chemo. I was wondering if anyone here is on nab-paclitaxel Chemo treatment. If so I would like to talk about the side effects.

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26 comments
Comment
CA

Community Member

24 days ago

Managing nab-paclitaxel side effects can be challenging, and connecting with others who have experience with this treatment can provide valuable insights and support. Many community members have shared helpful strategies for dealing with various side effects from this medication, so hopefully others will chime in with their experiences and what has worked for them.

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YG

Community Member

23 days ago

I hv a new scan next week I pray mines is good cause chemotherapy is something

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AC

Community Member

23 days ago

I'll pray for you to have a clean scan

YG

Community Member

23 days ago

Thanks. It’s scary. For sure. But gotta keep trusting and believing

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MS

Community Member

19 days ago

Hi Amy, Was this your first rounds of chemo before the CT/pet scan?how many rounds did you have before the testing? How often??which chemo??? Lannie

YG

Community Member

19 days ago

No I have had 6 rounds my last was supposed to be sep 24. I hope and pray it is.

YG

Community Member

19 days ago

Every 3 weeks. This will be my second pet scan

AC

Community Member

19 days ago

This will be my second round of chemo. My first was done in January, then I was on a once a day pill called Zejula. My body couldn't take the strong dose so they had to keep on cutting it back because of the aide effects. The Chemo I was originally on was PACLitaxal and CARBOplatin. I actually handled those pretty well. I had 6 rounds of chemo my first time, one treatment every 3 weeks. I was told that the chemo I have already done was some of the strongest you can have. I had surgery for a full Hysterectomy, plus an appendectomy cause my cancer spread. Hope this answers your questions, let me know if I missed one. 😀 Amy

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YG

Community Member

19 days ago

Yes I’m on the carbonation. Advadtin. And taxol It’s. Alright just the side effects. I hope no more surgery

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AC

Community Member

19 days ago

I was told they didn't think surgery was necessary for the new mass so that was a plus. Amy

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MS

Community Member

19 days ago

Hi Amy, I had the same chemo as you but after the 6 rounds they put me on Avastin infusions every 3 weeks. Just had my 11th dose. They said 2 years on Avastin Infusions!!!I have no energy at all and other side effects. I hope you feel better soon!! Lannie

MS

Community Member

19 days ago

Hi Yvette, Are you on taxol/carbo and Avastin at the same time??? Lannie

YG

Community Member

19 days ago

Yes.

MS

Community Member

19 days ago

Yvette, Good luck with your scan!! 🙏🙏🙏🙏❤️❤️❤️ Lannie

AC

Community Member

19 days ago

Hi Marlaine, Did your cancer spread to other areas before they caught it? Mine did so I think that’s why I’m not on the Avastin infusions. Anyway, felling pretty good today, how about you? Can I ask if you are working at all, because I just don’t have the energy. Amy

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MS

Community Member

18 days ago

Hi Amy, Yes, I had stage 3. They did surgery, complete hysterectomy . Then chemo/ taxol/ & carbo. 6 treatments. The pet/ctscan after chemo looked good so they started me on Avastin infusions every 3 weeks ( for 2 years) just had my 11th dose. I am retired special ed teacher so haven’t worked in years. The chemo and now the Avastin makes me feel horrible all the time. I have horrible fatigue, nausea, neuropathy, pain all over ,horrible taste in my mouth all the time, brain issues, breathing problems.I force myself to do stuff around the house, but that’s as much as I do. I have a lot of other medical problems so that may be why I feel horrible this time. I hope you feel better!!! Let me know how you are doing!! Lannie❤️❤️❤️

MS

Community Member

18 days ago

Amy, I would ask your doctor about the Avastin,so far it’s been keeping it away. There are a couple of tests they can do to find out exactly what is good for your type of tumor( .if they still have your tumor. ) 1)Caris Life Sciences (tumor test) 2) Natera/Signatera(Blood Test) if I were you, I would just definitely ask about these two tests. Lannie❤️❤️❤️

LJ

Community Member

15 days ago

Has anyone tried fasting prior and after infusions I've read interesting studies. Haven't talked to the oncologist yet though just wondered if anyone has tried.

AC

Community Member

14 days ago

I usually eat at the center if im hungry. They have all kinds of snacks plus salad and sandwiches. It just depends on what time I go. If its late morning I have to eat something or I start to feel nauseous.

AC

Community Member

14 days ago

Lannie, I will ask. Just got home from center, had labs today. If they look good then I go back tomorrow for treatment. I will keep you posted. Feeling good today. Hope you are doing well.

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MW

Community Member

14 days ago

I would suggest to all with ovarian cancer to consider clinical trial. There are alternatives now that do now use chemo or very low doses of chemo. The first one I did had fantastic results. Of course it always recures. Looking to start another clinical trial mid Sept. The side effects are far less.

YG

Community Member

14 days ago

Well yall I had my scan today. It’s looking good turmor is still shrinking. But I couldn’t get infusion today. White blood cells are too low. I’m sad but grateful. About the tumor

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MS

Community Member

14 days ago

Hi Amy, Yes, it did spread. I would definitely ask your oncologist about Avastin . Still feeling bad. Glad you are having a good day😍😍

MS

Community Member

14 days ago

Yvette, Congrats on a good scan!!!❤️❤️❤️😍 Sorry about the white cells. Do they retest your blood in a couple of days or so to see if you’re OK to take your infusion? Lannie

YG

Community Member

14 days ago

Next Friday.

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