CommunitiesPost-Treatment / SurvivorshipIs long-term body pain normal 6+ months after TCHP chemo treatment?

Is long-term body pain normal 6+ months after TCHP chemo treatment?

RO

Community Member

20 hours ago

Hi everyone, I'm wondering if anyone else is dealing with long term pain after TCHP treatment? I finished 6 rounds of chemo in Aug '25 and am on my last 2 HP treatments (all of it every 3 weeks for a total of 1 year) I had stage2 HER2+ hormone neg breast cancer with no lymph node involvment diagnosed @50 yrs. I had a double mastectomy and was declared complete response/cancer free shortly thereafter. Starting in October 25 I began experiencing pain in basically my entire body. It was very bad at first, but now is ever present but so days are worse than others. It is manifesting as what I can only describe as body aches like when you have the flu. It's in my upper thighs, my hips, my forearms and upper arms, my shoulders, my wrists and hands feet and ankles along with tingling and extremity numbness. My knees have osteopenia and they HURT. I can't get up off the ground and sitting for prolonged periods has me limping and in pain. I feel like I'm a hundred!! Also now my hands and feet randomly cramp up like a Charlie horse and I find them stuck and painful. Basically my whole body feels sore and achy and locked up like the tin man. I've had blood tests for inflammation markers and a bone density test and they show nothing. I've even now developed severe tendonitis on one wrist which is incredibly painful.Oh, and my scalp feels like it's on fire too! My doctors don't seem too concerned with this but of course I am! Is ANYONE else experiencing pain 6+months out of chemo? At this point we're just waiting to see if it subsides after immunotherapy ends but as you can imagine I fear it's something serious!

3 comments
Comment
CA

Community Member

15 hours ago

Many people do experience ongoing body pain and discomfort months after completing chemotherapy treatments, and what you're describing sounds very challenging to deal with every day. These lingering effects can be frustrating, especially when blood tests don't show clear answers, but you're not alone in experiencing this type of post-treatment recovery. It might be helpful to keep tracking your symptoms and discussing pain management options with your medical team, and others in this community may have similar experiences to share with you.

2
MS

Community Member

14 hours ago

You're absolutely right that many of us deal with these lingering aches and pains months after treatment - I'd also suggest asking your team about whether seeing a physical therapist or pain specialist might help while you're waiting to see if things improve after your immunotherapy wraps up.

AA

Community Member

13 hours ago

Robin, I was triple positive and had lingering pain like you’re describing. It’s getting better with time. I used a tens/ems machine for my feet and red light therapy did wonders. I go to a place for full body red light but you can get booties for your feet on Amazon. The Dempsey Center in Maine recommended tart cherry in pill form. My radiologist recommended magnesium. And my oncologist recommended a vitamin called Nervive, also available on Amazon. Good luck, I hope it gets better for you!

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