Post-Treatment / Survivorship

Is long-term body pain normal 6+ months after TCHP chemo treatment?

Hi everyone, I'm wondering if anyone else is dealing with long term pain after TCHP treatment? I finished 6 rounds of chemo in Aug '25 and am on my last 2 HP treatments (all of it every 3 weeks for a total of 1 year) I had stage2 HER2+ hormone neg breast cancer with no lymph node involvment diagnosed @50 yrs. I had a double mastectomy and was declared complete response/cancer free shortly thereafter. Starting in October 25 I began experiencing pain in basically my entire body. It was very bad at first, but now is ever present but so days are worse than others. It is manifesting as what I can only describe as body aches like when you have the flu. It's in my upper thighs, my hips, my forearms and upper arms, my shoulders, my wrists and hands feet and ankles along with tingling and extremity numbness. My knees have osteopenia and they HURT. I can't get up off the ground and sitting for prolonged periods has me limping and in pain. I feel like I'm a hundred!! Also now my hands and feet randomly cramp up like a Charlie horse and I find them stuck and painful. Basically my whole body feels sore and achy and locked up like the tin man. I've had blood tests for inflammation markers and a bone density test and they show nothing. I've even now developed severe tendonitis on one wrist which is incredibly painful.Oh, and my scalp feels like it's on fire too! My doctors don't seem too concerned with this but of course I am! Is ANYONE else experiencing pain 6+months out of chemo? At this point we're just waiting to see if it subsides after immunotherapy ends but as you can imagine I fear it's something serious!

Has anyone experienced Achilles tendon problems from AI medication?

Hi everyone. I had early stage breast cancer and they put me on AI’s. The side effects were overwhelming. Now I am having trouble walking. I found out that a known side effect is tears or ruptured Achilles tendons. Has anyone experienced that?

What are common long-term side effects 2 years after lung cancer treatment?

I am 2 years out from small cell lung cancer, latest PET scan showed no cancer at this time. My question is are any of you experiencing side effects from your cancer/treatments. I have edema, my body aches most days, I have issues with my legs and walking. None of my docs have any answers for me, I am so depressed over all this. I may be in remission but the side effects are upsetting to me. Any suggestions, help with my issues.

How to find a cardiologist who specializes in radiation heart damage?

Hi all! ~ I had stage 3 breast cancer in 2011. Had chemo, radiation, double mastectomy and am cancer free. My issue relates to my heart. I'm trying to find a cardiologist that specializes in radiation damage. I have a defibrillator for Mobitz type 2 arrhythmia and a very slow heart rate. I am having serious shortness of breath after walking just 2 blocks. My current cardiologist just told me there is no damage to my heart. My previous cardiologist said that my heart perfuses at 38%, I have regurgitation in the hepatic and IVC portal. If anyone has any recommendations ~ please help. I'm in Arizona.

How do I cope with joint pain and anxiety after cancer treatment?

Hi, my name is Becky. I was diagnosed with stage 3 esophageal cancer. I completed radiation and chemo. Before Christmas, I was told I was in remission. I am an ex-coach and still enjoy sports. My joints are so sore it is difficult to participate. I am waiting anxiously for results of pet scan. Any advice. I so wish I was the same person I was pre-cancer.

How do I cope with joint pain and anxiety after esophageal cancer treatment?

Hi, my name is Becky. I was diagnosed with stage 3 esophageal cancer. I completed radiation and chemo. Before Christmas, I was told I was in remission. I am an ex-coach and still enjoy sports. My joints are so sore it is difficult to participate. I am waiting anxiously for results of pet scan. Any advice. I so wish I was the same person I was pre-cancer.

What treatments are available for lymphedema after breast cancer?

I was diagnosed with breast cancer in April 1993 followed by surgery, chemo and radiation. I developed lymphedema in my arm 5 years ago. Is there any treatment to manage this condition besides using a pump at night and wearing a compression sleeve during the day? I've heard that there may be a type of surgery to correct this condition. What type of doctor would be able to give me more information?

How do you overcome severe fatigue and weakness after lung cancer treatment?

I was diagnosed with non-small cell lung cancer in August 2021 I had surgery November 2021 started chemo the end of the year seven hour treatments every three weeks for six cycles next CT clear next CT following had small nodule outside. My esophagus started chemo and radiation together for six more weeks then had clear CT. several months later discovered I had pseudomonas Colonized in my lungs. I had had it for 10 months struggling for my life before they realized what was going on. Went to a Special treatment center for five weeks antibiotics 24 seven through IV felt fantastic leaving the hospital by a miracle. Masuda motors was completely gone within a month. I was struggling again with low oxygen fatigue and weakness. So much that I don’t leave the house. I have been struggling with infections since I have been in remission for two years. I was recently diagnosed with pseudomonas which was treated with antibiotics after six weeks of finding the one that worked I do have COPD and I am struggling with life. I just cannot get my body up and going again. I am clear of cancer clear of infection, but yet my body does not want to move. It has been five years since the beginning two years in remission numerous infections. My question is has anyone experienced total fatigue weakness which caused lack of ambition to do anything and how do you get through it?

Why does food taste terrible after eating during cancer treatment?

I have completed 7 weeks of radiation and three rounds of chemo for early stage base of tongue cancer. When I eat something, the taste is ok at first but as I continue to eat the taste turns into something terrible. Also, I have a constant clear fluid running from my nose.

How long do ovarian cancer survivors stay on Zejula maintenance?

Stage 4a HGSC Ovarian cancer survivor. Diagnosed August 2022, 3 rounds chemo, debulking/hysterectomy, 3 more rounds. On Zejula until May 2026. (3years). Clean scans thus far. So grateful!