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Post-Treatment / Survivorship

For those adjusting to life after treatment

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How long after chemo until PET scan results?

PH

Community Member

4 days ago

I was diagnosed with MZL lymphoma nodal and extra nodal stage 4. My last chemo and immuno therapy was july 10 2026 will get diagnostic PET scan Sept 9. Then we have a new baseline … overwhelmed

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Why am I having severe complications 7 months after bladder surgery?

MS

Community Member

7 days ago

7 months post robotic surgery for MIBC (bladder and prostate removal), my PET and DNA blood tests remain negative However, my body took a bad turn recently, with a severe UTI. Landed in the hospital with a Cascade event that included lung and heart syndromes. Oxygen and heart meds to enhance blood & 02 transport. Now, the side effects are taking a toll. Low BP, nausea, low urine production, and facial impetigo (painful). No fun! Fr om cancer to metabolic. Worries.

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How do I cope with scan anxiety after finishing lung cancer treatment?

SO

Community Member

22 days ago

I just finished my first course of treatment for Stage 3B NSCLC, complicated by blood clots in my leg and lungs. I had a repeat scan Saturday. Today I meet with the oncologist to find out the results of the scan and where I go from here. I am so scared. I didn't sleep at all last night. I know I don't want to ever have chemo again. How do I get through this? So many people think I am now "fine" since I completed treatment. I don't think I will ever again be fine. Any words of wisdom for me?

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What were the key cancer research findings from ASCO 2024?

OP

Community Member

2 months ago

From early detection to enhancing survivorship care, here are four important cancer research findings from ASCO 2026. https://outcomes4me.com/article/from-yoga-to-glp-1s-cancer-research-updates-from-asco-2026/

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What to expect after HPV+ tongue cancer surgery without chemo or radiation?

AM

Community Member

24 days ago

Hi, I was diagnosed with HPV P16+ squamish cell carcinona in 2023. I had an excellent surgeon in San Diego. He assured me that surgery was all I needed.No radiation and no chemo. I had surgery in 2023. I had a small tumor removed f my tongue. I had a radical tonsillectomy on the right side. I had 32 lymph nodes removed in my neck. I have a dry mouth.

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How can I overcome body stiffness after sarcoma surgery and chemo?

MA

Community Member

a month ago

I was diagnosed with sarcoma last May in the abdomen. Had 2 major surgeries and chemo. Side effects right now are stiffness of body, how can I overcome this? Mandy

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Does chemotherapy-induced neuropathy ever go away after 10 years?

MP

Community Member

2 months ago

I am 10 years post colon cancer chemo. I think it was.FOLFOX. I was told that the CIPN goes away in 95% of the patient after the chemotherapy stops. I must be one of the lucky ones because here I am 10 years later still dealing with it and it continues to get worse. I think they call it coasting peripheral neuropathy. Is there anyone in this group dealing with this and has anyone found anything that helps? My whole body basically is numb abut my feet in my hands are the worst. Mine isn't so much pain unless I'm on my feet for long periods, but it does cause balance issues and issues with tasks where I need to use my hands. If you were to see me walking down the street you would swear I had drank a fifth of Jack.🤣I take 600 mg of alpha lipoic acid a day, I take B1 plus a multivitamin and I take B12 shots once every two weeks. I'm also taking naltrexone 3 mg a night. I used to take gabapentin, but I didn't see where that was helping much so I stopped taking it. One thing I know for sure, this is so debilitating that I wish I had not had the chemo as there was only a 20% difference in the odds of the cancer coming back if I did not have the chemo. Any ideas would be helpful.TIA

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