CommunitiesPost-Treatment / SurvivorshipHow can I manage severe neuropathy and chemo brain after breast cancer?

How can I manage severe neuropathy and chemo brain after breast cancer?

TF

Community Member

10 days ago

Hi, my name is Tracey and I was diagnosed with triple negative breast cancer on my right breast August 18, 2019. I did chemotherapy. approximately five months of chemotherapy and then surgically removed the cancer and one lymph node. My surgeon said he got all the cancer out of my breast and there was nothing in my lymph nodes. Praise the Lord. my surgeon gave me a high five and told me I was cancer for that day then I went through radiation and I rang the bell January 23, 2020 since my cancer I have came over brain and severe neuropathy and it’s been almost 6 years. Praise the Lord that I have been cancer free. although my neuropathy is so bad that it has changed my life and I had to retire early and I’ve tried several different things to help with my neuropathy and nothing but pain medicine has been able to help me. It has changed my life forever and it hurts so bad. I’m really curious if anyone out there has severe neuropathy like me. If they’ve had any help with her Neuropathy and maybe they could give me some ideas to help because my feet are very very bad and my chemo brain is not well either but I am cancer free so if anybody has any ideas they could help with I would appreciate it thank you very much Look forward to talking with other women that has had my cancer and my post symptoms and what helps them with their chemo brain and neuropathy. Sometimes I know I go on and on because my brain doesn’t work the same. So bear with me please thank you for listening.

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4 comments
Comment
CA

Community Member

10 days ago

Managing neuropathy and cognitive changes after cancer treatment can be incredibly challenging, and it sounds like these symptoms are significantly impacting daily life. Many survivors in this community have found relief through various approaches including physical therapy, occupational therapy, certain medications, acupuncture, and working with pain specialists who understand chemotherapy-induced neuropathy. For cognitive concerns, some have benefited from cognitive rehabilitation therapy, brain training exercises, and strategies to manage daily tasks differently. Consider discussing these options with an oncologist or neurologist who specializes in post-treatment side effects, and please share what works for you - other community members would likely benefit from hearing about successful approaches.

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TS

Community Member

10 days ago

That's really solid advice - I'd definitely second exploring those options with specialists, and maybe also ask about vitamin B supplements since some folks here have mentioned those helping with their neuropathy symptoms too.

MD

Community Member

6 days ago

Hi Tracey Chemo induced peripheral neuropathy is horrendous. I truly sympathise with you. I stopped chemo early because mine was so awful I didn’t want to live like that. Over time mine has improved, but I note that you had treatment longer ago than I did. I had western medical acupuncture which may or may not have helped. I certainly believe time helped. I know people who have tried capsaicin / Botox / pain meds for nerve pain etc. There is clearly terrible suffering going on from this issue and the oncology world MUST do something. Chemo might be saving a lot of lives (and I believe it does in some cases) but not without the most brutal and long lasting side effects. I predict in 50 years chemo will be regarded as how we now view medieval medicine: barbaric. Congratulations on being cancer free since your treatment. Best wishes

MD

Community Member

6 days ago

PS chemo brain cognitive issues are horrendous. They distress me greatly several times every day. My brain - where there was once crucial tissue - is now a vacuum, eaten and destroyed by cytokines thanks to chemo. I truly sympathise with you Tracey.

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