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5 months agoI am 58 and was diagnosed with endometrial carcinoma stage 4 metastasis to lungs with a grade 3 tumor estrogen negative September 2023. My oncologist's office is terrible. They don't explain anything expecting me to just follow blindly. They tell me to report changes then never return my calls. I did several alternative things along with 6 cycles of corboplatin and paclitaxel with Keytruda then 2 infusions Keytruda alone. My oncologist was going to keep me on Keytruda indefinitely until I had a reaction requiring hospitalization. I'm now on artificial hormones for the rest of my life. The plan was chemo to shrink the tumor enough for surgery then radiation. God was gracious to me, and I had a great response to treatment. The tumor is gone and scans have been clear for 20 months. I am not a candidate for radiation. My oncologist wants me to have surgery, but I'm not sure. Tumor is gone and it could come back anywhere so why do surgery right now. I'm in remission now but the prognosis for a 5 year survival rate is not good.
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5 months agoThis is such a difficult decision to navigate, especially when communication with the care team hasn't been ideal. Many patients face similar uncertainty about whether to proceed with planned surgeries when treatment has been so successful. The decision about surgery after achieving clear scans involves weighing many factors that only the medical team can fully assess, including the specific characteristics of the cancer, overall health status, and potential benefits versus risks. Consider seeking a second opinion from another oncologist or asking for a detailed consultation where all questions can be thoroughly discussed - patients deserve clear explanations about treatment recommendations and the reasoning behind them.
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5 months agoGod is good. Listen to you.
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4 months agoThat's great news in remission I feel like wise on some docs they think we are suppose to know an understand every little detail an small details can obviously be the difference between living or dien or understanding an not honestly we already have fragile emotions that diagnosis dumps on us all at once I was lucky enough to get a great radiation docter an chemo docter an also I had went to UCSF for brachy therapy i was on cisplastin keytruda an 30 rounds of radiation an 8 chemo they say my tumor shrunk to a five centimeter from 8.2 im stage 3 cervical cancer which mastisized to my lymph nodes an stomach thank God my body reacted well but I am awaiting a new pet scan to see where we go from here its very scary so I feel your pain an discouragement as far as docters go get second opinions if need be im being seen at UT now which is great docters in all I hope an pray the best for you
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3 months agoWhat would the surgery involve? To decide maybe you need an exact overview of what they plan to do. Also their reasoning for operating. Why aren’t you a candidate for radiotherapy? Did they say? Just wondering. I don’t know anything about your cancer (mine was breast) Good to hear you’ve had clear scans for 20 months.
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12 days agoMaria d Thanks for your reply. I am now 2 years remission. To answer your questions, the surgery would be a complete hysterectomy with some lymph nodes just to be sure. The reason for operating is that it most likely will come back in the original area. If we wait and it comes back it may not be operable. Well, it wasn't operable in the first place because of size and location. The plan was to reduce the tumor so she could operate, but now there is no evidence of disease. Also, it was metastatic just starting to show in my lungs so it could come back anywhere. I tend to be a logical thinker. I am not a candidate for radiotherapy because the oncologist says there is nothing to target and a few enlarged lymph nodes are too small. There would also be some collateral damage to my bladder and it would not be curative or improve my quality of life. Blessings in your journey.
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