CommunitiesPost-Treatment / SurvivorshipShould I have surgery if my stage 4 endometrial cancer is gone after chemo?

Should I have surgery if my stage 4 endometrial cancer is gone after chemo?

DH

Community Member

24 days ago

I am 58 and was diagnosed with endometrial carcinoma stage 4 metastasis to lungs with a grade 3 tumor estrogen negative September 2023. My oncologist's office is terrible. They don't explain anything expecting me to just follow blindly. They tell me to report changes then never return my calls. I did several alternative things along with 6 cycles of corboplatin and paclitaxel with Keytruda then 2 infusions Keytruda alone. My oncologist was going to keep me on Keytruda indefinitely until I had a reaction requiring hospitalization. I'm now on artificial hormones for the rest of my life. The plan was chemo to shrink the tumor enough for surgery then radiation. God was gracious to me, and I had a great response to treatment. The tumor is gone and scans have been clear for 20 months. I am not a candidate for radiation. My oncologist wants me to have surgery, but I'm not sure. Tumor is gone and it could come back anywhere so why do surgery right now. I'm in remission now but the prognosis for a 5 year survival rate is not good.

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3 comments
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CA

Community Member

24 days ago

This is such a difficult decision to navigate, especially when communication with the care team hasn't been ideal. Many patients face similar uncertainty about whether to proceed with planned surgeries when treatment has been so successful. The decision about surgery after achieving clear scans involves weighing many factors that only the medical team can fully assess, including the specific characteristics of the cancer, overall health status, and potential benefits versus risks. Consider seeking a second opinion from another oncologist or asking for a detailed consultation where all questions can be thoroughly discussed - patients deserve clear explanations about treatment recommendations and the reasoning behind them.

JS

Community Member

19 days ago

God is good. Listen to you.

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CS

Community Member

9 days ago

That's great news in remission I feel like wise on some docs they think we are suppose to know an understand every little detail an small details can obviously be the difference between living or dien or understanding an not honestly we already have fragile emotions that diagnosis dumps on us all at once I was lucky enough to get a great radiation docter an chemo docter an also I had went to UCSF for brachy therapy i was on cisplastin keytruda an 30 rounds of radiation an 8 chemo they say my tumor shrunk to a five centimeter from 8.2 im stage 3 cervical cancer which mastisized to my lymph nodes an stomach thank God my body reacted well but I am awaiting a new pet scan to see where we go from here its very scary so I feel your pain an discouragement as far as docters go get second opinions if need be im being seen at UT now which is great docters in all I hope an pray the best for you

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