What are the side effects and benefits of taking Cabometyx?

Cabometyx experiences can vary quite a bit from person to person, so hearing from others in this community who have taken it for kidney cancer can provide valuable insights. Many members find it helpful to share their experiences with side effects management and how the treatment has worked for them, so hopefully others will chime in with their perspectives.

I’ve been taking cabometetyx for approximately 1 plus years. I belive it has been tolerable for me. I don’t believe I’ve had side effects from it?

Shan, I started on Cabometyx this past October along with Opdivo. Had to stop Cabo twice because of several side effects- Uveitis & low platelet count the most serious. Started with 40 mg & will start back up in a couple days with 20 mg. I’ve had several other “ manageable” effects so overall worth the effort. Recent scan showed reduction in tumor & lymph nodes. Read up on all the side effects & be proactive on nutrition, exercise,mental health, etc. And you want an oncologist who embraces an “ involved” patient. Hope that helps. AJ

I was diagnosed with Stage IV RCC in March 2023. Had a total open left nephrectomy that April, approaching three years now. Started on Opdivo and Cabometyx 40 mg in June of that year. Basically I experienced all the side effects of the Cabo. Both extremes. It was horrible. Reduced the dosage to 20 mg and it has gone well. Also did the Opdivo Qvantig up until July of last year. One year of scans with the result of unremarkable / no recurrence. I also give myself a break from the Cabo for a month around Christmas each year. I have more scans scheduled for next month.