CommunitiesRenal Cell (Kidney) CancerDoes brain fog after kidney cancer surgery get better?

Does brain fog after kidney cancer surgery get better?

LA

Community Member

2 days ago

Has anyone else dealt with brain fog after surgery? I had a left partial nephrectomy after being diagnosed with Papillary Renal Cell Carcinoma (Stage 1b, Grade 3). I was told they got it all, am in remission, my margins are clear. I am female, just turned 69. The biggest side effects from the surgery has been brain fog and fatigue. I get tired over nothing and I have to rest. The brain fog is otherworldly. I have difficulty focusing when I read. I have difficulty retaining things. My husband will remind me of something he just said to me five minutes ago. Tonight I was heating up some food and had forgotten to turn the heat down and I burned my dinner. Worse, I took the pan off the burner but forgot to turn it off. This is completely out of character for me. I have never been the forgetful type of person. Known for retaining details about everything. My doctor says this is the last thing to “lift”. It unnerves me. Anyone else experiencing this after cancer surgery? If so, how are you handling it?

4 comments
Comment
CA

Community Member

2 days ago

Many people in this community share similar experiences with cognitive changes after cancer surgery and treatment. The brain fog and fatigue you're describing are recognized side effects that can occur following major surgeries and the stress your body has been through. While recovery timelines vary for everyone, many community members have found that these symptoms do tend to improve gradually over time, though it can be frustrating while you're experiencing them. Consider discussing strategies with your medical team, and know that sharing your experience here helps others feel less alone in their recovery journey.

1
DS

Community Member

a day ago

Lili, I’m sorry you’re going through this mental fog. I had a right radical nephrectomy and an 8 pound tumor removed in November 2023. I’m still struggling with some brain fog. The most difficult part for me is that I love to read but I can’t read new books because I can’t understand them. It is getting better, but your experience with cooking/burning dinner happened to me a few weeks ago. I’m trying to double check what I’m doing to make sure I’m shutting things off, locking the door, etc. To help with the brain fog, I started playing brain games like sudoku and apps like peak. I hope this helps.

1
LA

Community Member

a day ago

Daniel S - thanks for this. Reading is one of the most difficult things. I have to re-read sentences two and three times. I recently began playing games I used to play and having some success with them. It’s going really slow, but it’s going. Thanks for responding.

EM

Community Member

3 hours ago

Daniel, I wonder how big was that 8 pound tumor! I just had a left radical nephrectomy 2 months ago and my surgeon said that the tumor taken out was huge as big as the head of an adult person! It was grade 2 cancer. Two weeks ago, I had a CT scan and nodules were seen in my lungs. I’m starting to feel depressed now as I was hoping that I’ll be cleared of cancer after the surgery since that malignant mass was contained and no signs of metastasis. Now I feel so worried, as they are thinking of metastasis. I will be seeing my oncologist tomorrow and I wonder what’s next…??? Before my surgery and up to now, I’m on Keytruda and Axitinib. Just airing what I feel post surgery and maintaining all the treatments I’ve mentioned yet the possibility of metastasis. Ester

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