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24 days agoAt age 73 I was diagnosed with RCC in February 2024 and also Neuro Endocrine Cancer (NET). 15 inches if small intestine removed and resected. NET cancer remains as the nodules left would complicate my digestive system if removed. Oncologists tell me it is a slow growing cancer and monitor it with quarterly blood work, 6 month CT scans and 6 month PET scans. So far no major issues or symptoms. The RCC resulted in a total left kidney removal. Scans every 6 months. Finished one year of Keytruda in May 2025. Now taking thyroid meds as Keytruda effected my thyroid. Last GFR 57 and have proteinuria. Nephrologist monitoring and dietician has recommended foods to avoid. Considering everything, I am feeling really good and have awesome family support.
Community Member
24 days agoManaging two cancer diagnoses simultaneously presents unique challenges, and it sounds like you're navigating this journey with remarkable resilience and strong medical support. Many community members here have shared similar experiences with multiple health conditions, and your positive outlook while staying on top of monitoring schedules can be encouraging for others facing complex diagnoses. Consider sharing specific strategies that have helped you coordinate care between different specialists or manage the emotional aspects - your insights could be valuable for others walking a similar path.
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21 days agoMy husband had to start thyroid meds after 2 months on Keytruda. Lenvatinib is giving his gallbladder problems. Good to hear that you are in the monitoring stage with less cancer fighting drugs. Good nutrition is vital. Faith and family get us through the hard daily stuff. My husband is 74, diagnosed 1/6/26 stage IV FHdRCC- the darn rare genetic type. So it's faith in God as the Oncologist only has palliative meds to possibly shrink the lung & liver metastasis and if those spots can be shrunk enough possibly kidney & tumor removal. So he fights on and we but our faith in God because the Oncologist admitted that "I don't think anyone is an expert with FHdRCC". David- you help us smile knowing others have been on Keytruda a long time.
Community Member
13 days agoHope all goes well fkidnor u I haveyou ! 💗 I'm battling stage 3 kidney cancer that spread to my heart so I had my right right kidney took out in open heart surgery that was December of 2024 and have been on imminotherapy since March of 2025 I'm still on it and I wondered if anybody else has been through the same thing removed
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