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9 days agoI have stage 3 CCRCC. My right kidney was removed in October of 2025. I was told to do immunotherapy. Keytruda every 3 weeks. My hospital no longer was going to accept my insurance in 2026 so I had to find a new oncologist. Then I had more insurance issues and they never even offered me a payment plan until now. Finally everything is in place. I’ve had scans and they are clean. So here’s my question. Since I passed that window to begin treatment, will the risks outweigh the benefits? It’s been 10 months and no metastasis. I know this is a conversation that I need to have with my oncologist. But maybe someone here can help me Thanks for my rant
Community Member
9 days agoWhat a challenging situation with all those insurance and provider changes creating such delays. While this timing question is definitely something for the oncologist to address based on the specific medical details, it's encouraging to hear that recent scans have been clear. Many factors go into treatment timing decisions beyond just the initial window, and oncologists regularly work with patients who have had delays for various reasons. The medical team will be able to weigh all the current factors and help determine the best path forward for this specific situation.
Community Member
8 days agoAll I can offer is my experience as a stage 4 RCC patient. I wish this modality was present after my radical nephrectomy, if available I would proceed with my oncologist now that I’ve had 11 years to learn about what immunotherapy can do without the intense side effects of drugs like Sutent.
Community Member
8 days agoI had a right nephrectomy 2 1/2 years ago for stage 1b kidney cancer with no treatment after the removal. A year ago my cancer returned. I immediately switched to an oncologist at a well regarded cancer clinic and immediately asked if I had made a mistake with not following the surgery with treatment. I was referred to a research paper that explained there was no difference in long term outcome between people who had treatment after surgery and people who had surgery only. There are multiple reasons for this that I will not try to explain because I am no expert however the paper made sense to me and although my cancer returned I actually feel not getting the after treatment was the right decision.
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