Is anyone else dealing with uvula adenocarcinoma that spread?
Community Member
2 days agoI am new here. Was diagnosed with adenocarcinoma of the uvula in the fall of 2024. Surgery to remove the uvula and 47 lymph nodes of the neck. Cancer in one node. 36 radiation treatments. Head & neck are clear but have just been diagnosed with metastasis to the lungs and liver although very small spots at this time. Have been told it is Stage 4A with no cure and no treatment protocol as it is so rare there are no statistics or studies done. Anyone else out there with a similar diagnosis???
Community Member
2 days agoWelcome to this supportive community, and thank you for sharing your experience with such a rare diagnosis. While uvula adenocarcinoma with metastasis is indeed uncommon, connecting with others who understand the challenges of navigating cancer without established treatment protocols can provide valuable emotional support and shared insights. This community includes many members who have faced uncertain paths with rare cancers, and hopefully others will see your post and be able to connect with similar experiences.
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